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Type: Posts; User: GPA4Me

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    Re: Kidney Involvement

    Hey Andrew,
    Just saw this reply from you as I was browsing through some of the posts. I'm interested in your statement here. My CO2 had been a little low on my labs so my Nephrologist told me to...
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    Re: Managing symptoms and treatment for a flare

    I've been taking 20 mg of Omeprazole for years to control my GERD and it works very well. I asked my Nephrologist about the claims that it may hurt your kidneys and he said it is very rare and not to...
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    Re: First post - diagnosed in 2012

    I stated in my first post that I belonged to a Wegener's group on Facebook but eventually gave up Facebook. It's uncanny how many people on that group, and myself, who's symptoms started with the...
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    Re: Gave Up on Facebook Groups

    I would be really worried if I lost 5% every year. My nephrologist told me starting at age 45 you start to lose 1% a year. Several answers from a Google search showed a value that I believe works out...
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    Re: Gave Up on Facebook Groups

    I can't explain it but a recent lab report has my creatinine at 1.96 now which gives me a GFR of 34%. Of course I'm very happy about that but need to accept that it may go down again one day. Until...
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    Re: Suspected Sneaky Kidney Involvement

    Tylenol is ok OTC. I am taking Hydrocodone for my lower back pain. It is metabolized by the liver.
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    Re: Suspected Sneaky Kidney Involvement

    If you are taking any NSAIDS such as Ibuprofen, Aleve, or Aspirin, stop immediately! They will destroy your kidneys also.
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    Re: Gave Up on Facebook Groups

    I was very lucky that my Nephrologist is very knowledgeable about WG and he manages both diseases for me. He had me stop the Prednisone and Azathioprine in Sept 2019. My Anca was negative at that...
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    Re: Gave Up on Facebook Groups

    When I checked in to the hospital in 2017, my creatinine was 8 and my GFR was 6. I did dialysis for a year and when I came off, my creatinine was around 3.5. It started getting a little better over...
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    Re: Reactions to Covid-19 vaccinations

    I also had the Pfizer vaccine. Sore arm for several days after, and minor flu like symptoms after the second shot. I had a slight concern of my immune system going into overdrive and causing a flare...
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    Gave Up on Facebook Groups

    Hello All,
    My name is Larry. I am 69 years old and live in Florida. I was DX in June of 2017. Nearly died. Spent 4 months (March-June) in pain going to several doctors with no DX. On the last day of...
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