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Type: Posts; User: Trilabby

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  1. Re: Looking for a Rheumatologist in the Cleveland Ohio area connected with UH

    Thank you Pete, Aneinu, and Alaskatom for responding. I need to see if my insurance would cover Cleveland Clinic first and then make a decision. The doctors you mentioned would probably be my best...
  2. Looking for a Rheumatologist in the Cleveland Ohio area connected with UH

    Hi everyone,

    i was was diagnosed with Wegenerís September 2017 at University Hospital in Cleveland Ohio. I was set up with a UH Rheumatologist and started my treatments which are going ok with...
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    Re: My introduction

    Aneinu,

    Having an allergic reaction along with trouble breathing must have been really hard with each treatment for your son. I certainly freaked me out with my allergic reaction. I wasn’t totally...
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    Re: My introduction

    Alysia,

    would the the amount of steroids be the same for Cyclophosphamide? That is what my doctor wants me on now instead of the rtx. Would everything be the same like giving me Benadryl, Tylenol...
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    Re: My introduction

    Jerry,

    The nurses asked me if I had pain in my back but I didn’t. My head started to itch like crazy and I broke out behind my ears and all along my neck and side of my face in the hives. When my...
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    Re: My introduction

    Hi Alysia,

    I donít know how much steroids the nurses gave me to begin with but they gave me Benadryl and Tylenol too with time to let it all take affect. Iíve spoken with the doctor and she wants...
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    Re: My introduction

    Jeannette,

    It does sound like you had a very similar experience with your diagnosis. I wish I could have continued with the Rituximab but the nurses didn’t feel they could without authorization...
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    Re: My introduction

    Thanks all for your response and encouragement. I will find out Monday what the doctors will put me on. Always a waiting game it seems like for me. Take care!
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    My introduction

    Hi everyone,

    I found this group a couple of weeks ago and kind of been lurking but I think I am ready to introduce myself and tell my story. I am 62 which sounds so old to me but I feel like I...
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