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Type: Posts; User: windchime

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    Rest in peace Phil. May you go with God.

    Rest in peace Phil. May you go with God.
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    I was approved without an appeal or hearing. I...

    I was approved without an appeal or hearing. I would say just answer the questions honestly but base them off your worst day. You say you don't like seeing yourself sick, but I would not appear at...
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    Both my parents escaped any auto immune diseases,...

    Both my parents escaped any auto immune diseases, but with the luck of the draw, my sister and I both have them. Sjogren's for her and Fibrosing Mediastinitis for me. Lucky us.
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    Glad you are back safely Alysia. Wish you could...

    Glad you are back safely Alysia. Wish you could still be with Phil, but things will work out in God's time. In the meantime hugs to both of you. :love: :hug1:
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    In this case Mayo, Rochester has the surgeons...

    In this case Mayo, Rochester has the surgeons experienced in this disease and I doubt they have operated on all that many. From what I understand the calcification's are literally "like a rock" and...
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    OK it's time for an update and what has been...

    OK it's time for an update and what has been going on this summer. In other words, "What I did on my summer vacation." :rolleyes1:

    Made the trip to Nashville via Atlanta, towing my cousin along....
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    What an inspiration that you remained so positive...

    What an inspiration that you remained so positive during your entire ordeal. Glad things aren't as bad as they could have been. :biggrin1:
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    I have bilateral titanium hips joints and have...

    I have bilateral titanium hips joints and have never had a problem with them.
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    Jillian, there have been reports on here where...

    Jillian, there have been reports on here where pregnancy has put wegs into remission. The body is a wondrous organism. If you search pregnancy you may find the threads. Again, good luck to you and...
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    Please read the following book, "Alicia - My...

    Please read the following book, "Alicia - My Battle with Wegener's". It's available on Amazon. She is a member of the forum and her husband wrote a book about her journey with the disease and through...
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    The pred helped the pnd, at which time the...

    The pred helped the pnd, at which time the swelling went down and the wheezing disappeared. I have GERD to and they like to blame things on that also. Personally I think it was the pred drying up the...
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    Interesting site. Thanks for sharing.

    Interesting site. Thanks for sharing.
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    I tried twice to get down from 20 mg. This last...

    I tried twice to get down from 20 mg. This last time I went 1 mg at a time every 2-2 1/2 weeks. It has worked much better and I'm now down to 5 mg. I would still get some muscle aches the first...
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    Could be some swelling at the back of the throat...

    Could be some swelling at the back of the throat if she has any kind of post nasal drip. I had wheezing from that back in January. The pulmonologist listened to my throat with a stethoscope to...
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    When was your last gyn check up. Ovarian cysts...

    When was your last gyn check up. Ovarian cysts can cause that type of pain.
  16. Thread: Good news

    by windchime
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    Great news Lisa!!!

    Great news Lisa!!!
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    Bob, that's the type I have too. I understand...

    Bob, that's the type I have too. I understand about the irritation. I don't wear them too much since you can't wear socks with them.
  18. Hi Inge, maybe checking with your pharmacist...

    Hi Inge, maybe checking with your pharmacist would be a good idea. Sometimes docs figure that the contraindications with certain meds fall into an acceptable range. As far as checking with a doc, I...
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    I have a pair of the 5 toe shoes, but they are...

    I have a pair of the 5 toe shoes, but they are "water" shoes. They aren't too bad, but I have neuropathy and anything other than flip flops bother my feet. Still planning the Sept trip. Ticket is...
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    My thoughts are with you and Alysia. Please get...

    My thoughts are with you and Alysia. Please get well soon. xxoo
  21. Congrats on your new son.

    Congrats on your new son.
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    Hey Debra, I don't know about the problems...

    Hey Debra,

    I don't know about the problems with the page not staying up. Maybe try to go to Dr. Mercola's site and ramble around. Would love to meet up with you when you are down here. Keep me...
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    Grounding Technique

    I don't know if this has been previously brought up or not, but I found it interesting. There is a movie about this phenomenon that healed an entire town in Alaska. It is said to reduce inflammation....
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    Phil so sorry you are having to go through this....

    Phil so sorry you are having to go through this. It just sucks big time. Hang in there as you know we are all with you in spirit. Much love to you and Alysia and many prayers.
  25. Thread: Remission!

    by windchime
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    Congrats on your remission. Enjoy it, fatigued or...

    Congrats on your remission. Enjoy it, fatigued or not!
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