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Type: Posts; User: ohitsacrimebaby

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    Yeah, brigham and women's, they said methotrexate...

    Yeah, brigham and women's, they said methotrexate and high dose prednisone. I have my CT tomorrow and will find out what changes are in store.

    Today has been absolutely gorgeous!! I am just north...
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    Sorry Gabrielle! I just saw this. The humidity is...

    Sorry Gabrielle! I just saw this. The humidity is killing me. I've pretty much stayed inside where it's cool! I had the appointment on Aug 5th. I'm still waiting to hear back.

    How are you??
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    suppose its time for an update. I am now 5...

    suppose its time for an update.

    I am now 5 months in. My white blood cells have spiked again to 16. And platelets have maintained 550-620. Constantly sick.

    Ive been increased to 200mg of...
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    That's the one! Laconia, NH

    That's the one! Laconia, NH
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    It is hard to challenge her when I know next to...

    It is hard to challenge her when I know next to nothing about the disease. She listens to my concerns and works well with me.
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    im not positive of the doctors name but it's a...

    im not positive of the doctors name but it's a Brigham and women's hospital center for chest disease
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    I have an appointment for another opinion in...

    I have an appointment for another opinion in August in Boston...

    I don't distrust my rheumatologist but another opinion never hurts, right?
  8. Winter of 2013, I had 7 sinus infections back to...

    Winter of 2013, I had 7 sinus infections back to back and i couldn't shake it. ever since, i have never felt right. my fathers side of the family has a history of autoimmune diseases as well.
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    I have been here a handful of times because it...

    I have been here a handful of times because it isnt possible for me to drive 30-45 minutes when i am having breathing problems. it is literally the worst hospital i have ever been too.
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    February I had a wedge biopsy of my left lung,...

    February I had a wedge biopsy of my left lung, instead of healing, I had about 4 pints of fluid building up on my lung. The first tube was broken, second placed wrong and the third finally drained...
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    That was my thought as well, however my...

    That was my thought as well, however my rheumatologist has suggested it's "limited"...
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    Limited GPA

    I have searched for this topic and came up empty, perhaps the wrong keywords?

    My symptoms seem not to fit GPA, however coincide with something called "limited" GPA. My question is, what do you...
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    Lake Region General Hospital

    LRGH is the absolute worst hospital I have ever had the displeasure of being seen at. They have accused me of med seeking and fictitious disorder syndrome. They have called me crazy. They don't know...
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    I am currently on 100mg/day of Imuran. I have...

    I am currently on 100mg/day of Imuran. I have been struggling with GI issues since starting the Imuran. I am also being treated for histoplasmosis with 400mg/day of flouconazol. I was on...
  15. I am a patient at Dartmouth Hitchcock Medical...

    I am a patient at Dartmouth Hitchcock Medical Center in Lebanon, NH. However, Brigham and Womens center for chest disease seems to be my next step for another opinion.
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    25 years old, diagnosed with GPA

    i have been struggling with years with just a feeling of unwell. i've been given pretty much every run around until i finally got a thoracic surgeon to biopsy my lung. the basis for the biopsy was to...
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