Search:

Type: Posts; User: vincelv

Page 1 of 2 1 2

Search: Search took 0.01 seconds.

  1. Replies
    53
    Views
    4,906

    from what ive been through you cant always judge...

    from what ive been through you cant always judge wegeners on a blood test because you can be possitive one way and not show anything else...when i got diagnosed i got diagnosed on most of my symptoms...
  2. Replies
    5
    Views
    756

    im back..almost off my meds..yea..lol got the flu...

    im back..almost off my meds..yea..lol got the flu and didnt even have to go to the docs..while i was working front end cashier :D omg my pic i look hella fat..haha lost about 50plus pound too :D
  3. Replies
    23
    Views
    4,586

    i been seeing him evry three months also..lol he...

    i been seeing him evry three months also..lol he gets kinda mad because im not on the blood test every week..but i get it done when i can..but everytime it comes up good..im hopeing i can get off the...
  4. Replies
    23
    Views
    4,586

    still hanging in there..i feel im beating this...

    still hanging in there..i feel im beating this sickness..but i wake up with the reminder of my eye..and just think..dont get too cocky cuz if i let myself slip..that wont be good..
  5. Replies
    30
    Views
    2,371

    hey i understand..im 26 got the wegners..mostly...

    hey i understand..im 26 got the wegners..mostly sinuses and eye involvement but sinus rinse helps alot if used everyday.im at 25mg of pred..and still at 175mg of cytoxan.and down too one eye drop a...
  6. Replies
    165
    Views
    10,525

    i think my family doesnt understand,,and since i...

    i think my family doesnt understand,,and since i dont make it a big thing i think they dont take it as serious...like they have called me germaphobe..but if they were in my position they would be...
  7. Replies
    11
    Views
    4,717

    my acne went away..guess the taper is...

    my acne went away..guess the taper is workikng..lol all is good so far..down too 30 mg...yup yup.. and only taking one eye drop a day..but still on 175mg of cytoxan though :(
  8. Replies
    11
    Views
    4,717

    im still on 50mg of pred..but tapering..last time...

    im still on 50mg of pred..but tapering..last time i had the acne and i tapered they went away at about 30mg..so hopefully thats when they do this time...i just wanted to see if there was a preventive...
  9. Replies
    14
    Views
    1,097

    when your doctor isnt really taking you...

    when your doctor isnt really taking you serious..your paying for him or her..so you should be number one priority when your there with them
  10. Replies
    11
    Views
    4,717

    Prednisone Acne??

    how the heck you get rid of the acne side of prednisone..i clean my face..and my hair and still get acne on scalp and some on my forehead:predrage:
  11. Replies
    62
    Views
    24,367

    Sticky: yup i get the tremors sumtimes in my hands from...

    yup i get the tremors sumtimes in my hands from pred..but not bad..im finally getting to reduce my pred..i got to lower to 50mg yeserday..and after 2 weeks ill beable to go down to 40 mg..heck...
  12. Replies
    7
    Views
    1,177

    i see dr koeing here in utah..he is supposed to...

    i see dr koeing here in utah..he is supposed to be the best on the western side of the us..im lucky im living close to the center..its at the university hospital..
  13. Replies
    23
    Views
    4,586

    so far so good..i havent gotten sick yet on the...

    so far so good..i havent gotten sick yet on the cytoxan..keeping clean an sanitized at work helps alot..crossing the fingers..:)
  14. Replies
    21
    Views
    2,124

    i think it should be called...

    i think it should be called moonfacechemotosis.... LOL
  15. Thread: Foot Pain

    by vincelv
    Replies
    50
    Views
    5,878

    i had foot pain at the bottom of my foot even...

    i had foot pain at the bottom of my foot even before the meds..like the bottom of my foot would lock up..and stiffin..but idk if that is a symptom of wg
  16. Thread: eye pain?

    by vincelv
    Replies
    15
    Views
    3,641

    purr6 you should..i lost vision in my right...

    purr6 you should..i lost vision in my right eye..it only took a few months and i was seeing doc..that was before they actually diagnosed me with wegners..if you get scleritis of the eye with WG it...
  17. Replies
    12
    Views
    2,057

    sangye..mine was like that too..i tollerate pred...

    sangye..mine was like that too..i tollerate pred good..but i still hate to be dependant on it..rather not be on it all together.
  18. Thread: eye pain?

    by vincelv
    Replies
    15
    Views
    3,641

    tim not sure..but my rhuemy said that the docs im...

    tim not sure..but my rhuemy said that the docs im seeing are the best in the country..and they see all kinds of cases from lupus eye and RA eye..i have an appointment in 13 days with my...
  19. Thread: eye pain?

    by vincelv
    Replies
    15
    Views
    3,641

    ya..i been seeing dr.vitale..he is another doc...

    ya..i been seeing dr.vitale..he is another doc that is very great..im in best location for both..ya mine feels like its bulging some but probly some eye strain too cuz im only on the one eye..so im...
  20. Thread: eye pain?

    by vincelv
    Replies
    15
    Views
    3,641

    i did..he said its nothing..probly strain..but...

    i did..he said its nothing..probly strain..but still.i know pred can hide symptoms of infection.im nervous cuz my other eye..and i dont want too lose vision in this one..and my sinuses are part of my...
  21. Thread: eye pain?

    by vincelv
    Replies
    15
    Views
    3,641

    eye pain?

    does anyone here get eye pain or more like a bulging feeling in i as a side effect from prednisone?
  22. Thread: News of Jack

    by vincelv
    Replies
    1,030
    Views
    70,542

    Thats good to hear that your feeling good..hey i...

    Thats good to hear that your feeling good..hey i like that coffee and chocolate thing..lol but my apitite on pred would make me eat the whole box..lol :w00t:
  23. Replies
    23
    Views
    4,586

    my doc thinks ill only need three to six month...

    my doc thinks ill only need three to six month but he said probly 4 months on cytoxan then he thinks ill probly beable to switch to the metho med.. i still think ive had other involvement.i told my...
  24. Replies
    23
    Views
    4,586

    im on 175mg of cytoxan 60pred.. every other day...

    im on 175mg of cytoxan 60pred.. every other day is bactrim..then all of my drops..and vitamins an so on..imma keep clean..hopefully i do good
  25. Replies
    23
    Views
    4,586

    I have been on prednisone for almost a year..its...

    I have been on prednisone for almost a year..its been up and down..i had scleritis which they didnt know the underlying cause..so typical treatment was pred drops and pred pills and nsaids..but it...
Results 1 to 25 of 27
Page 1 of 2 1 2