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Thanks Pete, no my ENT has done cultures and an MRI and found nothing. He has no idea what's causing it, plus it seems to come and go.

Thanks I'll try it. I've tried increasing the dose age of Ibrouphfen to what they told me I could take last time I was in the ER, but that didn't really help.

Yes this my appointment is with a...

Does anyone else get swelling under one eye. It seems to get worse throughout the day and worse the more I do and is linked to the ear pain. Some days it's like someone punched me under the eye.

Does anyone else's pain get worse in the evening? I'm fine till about 1pm and by 6pm I just can't stand it. Then the next morning it starts all over again.

I need to do something I can't stand the pain past 6pm everyday. I just don't know how to ask. Maybe I'll try going back to my pcp, or going to the pain specialist. I just know I can't do this...

Who perscribed them? Do I need to go to a pain specialist? I feel like I'm just going round in circles? I'm not sure I can stand this for a month until I see the specialist at UCSF.

I still don't have a diagnosis, and I gave to wait another month to see a specialist at UCSF. I'm just looking for a way to manage until then.

I have to wait another month to see specialist, but I'm experiencing really bad headaches. Has anyone else found anything that works for them?

My ENT suggested seeing a pain specialist about nerve blockers. Has anyone tried this?

Thank you both, at this point I just want to know. I've been on 30mg Prednisone for two months and it's helping, but I'm still struggling. I feel everything is on hold until I can get a dianosis,...

Hi Darren,

How did you get on? I've just been referred to UCSF. I've been sick for two years and I'm desperate for a diagnosis.

Nicola

Does anyone else struggle to sleep? I'm so tired I fall asleep but wake up after two or three hours because my sinuses are so blocked. The only thing that helps is a shower. I'm taking 30mg of...