Search:

It has been about 2 weeks since the Hospital and final Ritixun treatment. I think her Wegeners is under control but says her nose is still swelled and hurts giving her head pain but at least tylonal...

After 3 trips to the EM, 9 days in the Hospital, 2 CT scans, a MRI, several Xrays and finally a biopsy the Doctors now say its the WEGENERS and no other infections. This site and all your comments...

Your right not a question for the group but the 3 doctors only started talking to me today after the biopsy. Now they are saying its the worst wegeners sinus flare up they have ever seen. The...

Would the Doctor use cefepime IV to treat a staph infection?

They may be thinking a fungle infection and have been giving her an IV antibiotic. keeping her in the Hospital at least until Monday when they do the scope. [she may have had a really slight...

60 total per day

thanks all, 60 mg of predizone and maybe for a week. I'm on my way to the Hospital now.

any one have any thoughts on this? after 3 trips to the EM she is now in the hospital for the second day now. 3/21 On Monday she had the ritxuen and the pain in her sinus/head area is still...

me2 I hoped you were wrong but this morning it seems like the pain is starting to come back. Are you getting infusions now and is it for sinus?

We just got back from the Ritexan infussion and so far her pain seems much better if it keeps on. I think because ct scans and xrays didn't show any thing her R Doctor is still not convinced in a...

we just got back from the ER for the second time in 2 days. Oxycodone also didn't help. the rituxan infusion is scheduled for Monday morning in 2 days. I hope it helps.

I'm glad your doing ok now. It seems like the sinus flare-up at least for her has been the most painful of all. Now we're waiting for Blue Cross to approve the rituxan.

MikeG, is that when you first found out about you Wegener's?

Update, We got in to see the Doctor right away but had to make a few phone calls with the office explaining how urgent it was. It's 2 days later now and we are waiting for a call with the infusion...

I want to thank every one for their help in trying to figure this out. I think people who have lived with wegeners have a better insight than even the best Doctors. After reading all your comments, I...

That's when the Doctor scheduled the blood tests but we'll call on Monday and try to get things moving sooner. The Doctor seemed more concerned that the 2 liver tests went up last month and had her...

Max, do you know if the W. sinus treatment you had is the same as the treatment for other area's. In her case for the kidney it was predazone and 4 infusions of Rotexan. We will be calling the...

Thanks Pete, Her specialist is a [excuse my spelling] Rumatologist. Sinus is new to us as her last flare up 2 years ago was kidney. The ENT Doc he sent us to last week thought he saw some W. build up...

Hi, we are new to the site but my Wife has had W. 7 years now and this is the first time she has had problems with the sinus area. We think it is a flare up but xrays and ct scan don't really show...