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  1. Thread: imuran

    by keegan55
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    1,585

    imuran

    Took first dose of imuran today I sure hope this works. I went to grocery store and saw all the other people older then me happy laughing buying stuff etc. I felt like I was on last legs came home...
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    Thanks to all for your help. The Dr at UNC WHO...

    Thanks to all for your help. The Dr at UNC WHO SPECIALIZES in Wegners is going to treat me . She will see me dvery three months. Its a 6 hour round trip but at least she is watching out for my...
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    very interesting thank you for sharing

    very interesting thank you for sharing
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    decreasing meds

    does this sound right?I told my Rheumatologist the findings of the UNC doctors.Doctor Julie McGregor feels that my kidneys do not like the MTX and it is causing problems with the kidneys and She...
  5. Thread: kidney update

    by keegan55
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    1
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    869

    kidney update

    Unc Dr called with prelim results

    not diabetes or Wegners. Its the Meds woo hoo. Now i have to choose between imuran or rituxin she said I need to be on immo for at least 18 months so again
    ...
  6. Thread: Kidney

    by keegan55
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    1
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    786

    Kidney

    Had the biopsy at unc on Friday. Its a 3 hour drive each way. Went up night before and stayed day of. Got out of there at 6:30 pm too long of a day. Laying on my back killed me on pain meds since....
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    thanks for our reply. Does that worry you about...

    thanks for our reply. Does that worry you about the creatine.....ao what is tour gfr around 40 percent
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    how do you know you relapsed

    how do you know you relapsed
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    Mtx can also cause kidney problems thats where I...

    Mtx can also cause kidney problems thats where I am at right now I hate all these drugs
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    anything with Tylenol bad for the kidneys...

    anything with Tylenol bad for the kidneys anti-inflammatories are also bad for the kidneys that is why my pain management doctor gave me oxy I tried to take it only when I really need it like to sleep
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    It is maybe the mouse protein????

    It is maybe the mouse protein????
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    kidneys Rituxin or imuran

    I do realize I will have to have kidney biopsy oh my....
    The UNC nephrologist as I have mentioned wants me to go on
    Rituxin. She also mentioned imuran. So this is the question which is better and...
  13. Thread: kidneys

    by keegan55
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    2,518

    I was on Remicade mouse protein had a violent...

    I was on Remicade mouse protein had a violent reaction Dr said no never again so I am afraid even with the anti allergic drugs
  14. Thread: kidneys

    by keegan55
    Replies
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    2,518

    They said I had limited WG no kidney involvement.

    They said I had limited WG no kidney involvement.
  15. Thread: kidneys

    by keegan55
    Replies
    8
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    2,518

    kidneys

    Well I guess I will through it out there
    I was diagnosed march 2014 which they said was limited to lungs. On mtx no pred due to diabetes. A few months later started having blood and mucous when...
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    Wonder wjy the message icon is gray

    Wonder wjy the message icon is gray
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    kidney fuction

    At kidneyDr. It appears that my kidney function has dropped He would like me see specialist in chapel hill with bring so tired and the occasional blood and mucous from nose I will go I think they are...
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    When I take pred sugar hits 300 plus .I am also...

    When I take pred sugar hits 300 plus .I am also very overweight long years of pred for the arthritis I save the pred for thd shots to the joints...did u take enbrel?
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    Welcome this is a great group. I am pretty new. I...

    Welcome this is a great group. I am pretty new. I had symptoms for a few years but never dreamed it was GPA. I had bad ear unfection at 68 first ever. Then a skin lession that took 4 months to heal...
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    I have psoriatic arthritis and have been on...

    I have psoriatic arthritis and have been on Enbrel, humira ,remicade and again on enbrel on the last drug got the GPA the MTX can help both conditions. I was doing the light box but I dont want to...
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    I dont think I am in remission yet I cannot take...

    I dont think I am in remission yet I cannot take pred due to diabetes so just on MTX. Also dealing with psorasis and arthritis associated with that. The Drs. don't really explain the disease well at...
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    Wish i felt better

    I don't know how I am doing anymore. I still have small amount of blood from nose. The ENT has no idea why. He tells me he knows what GPA looks like. I still have the left node in lung which has...
  23. Thread: Updates

    by keegan55
    Replies
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    912

    Updates

    I had a CT in July here and the results I was told that there were no nodes left in lungs. The 2 on the rll and the 1 in the mrl were removed by wedge for biopsy which showed the GPA.the remaining...
  24. It depends on the severty of your gpa. Some are...

    It depends on the severty of your gpa. Some are lucky and it is limited to one area. This group has been so helpful with so much info. I read but dont reply to much hate typing lol. I hope you have...
  25. Happy anniversary.It is good u r doing well.

    Happy anniversary.It is good u r doing well.
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