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    Re: pberggren memorial thread

    Thank you, Michelle and Anne, from the bottom of my heart, for your beautiful and comforting words, and for being here all the way. I love you.
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    Re: Coping with stress on current pandemic

    Please read this one:

    https://abcnews.go.com/Health/cdc-death-report-fauci/story?id=72759172

    Dr. Fauci was the one who established the treatment protocol of ctx plus pred for weggies more then...
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    Re: Coping with stress on current pandemic

    Behaving like there is no covid - doesn't mean that it is not there. Worse - it only causes more spread of it due to not caring.

    Israel is in a huge problem now because of this kind of attitude:...
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    Re: pberggren memorial thread

    Thank you, Natty. You are very kind. I hope that you are doing well. God bless you.
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    Re: pberggren memorial thread

    Phil's father passed away couple of days ago. He was very sick in the last 3 years or so and suffered a lot.

    I was in contact with him and with Phil's mom couple of times a week on line and will...
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    Re: Wegener's and surgery

    As far as I know we need to increase the pred and take extra antibiotics.
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    Re: Happy Birthdays Thread

    Happy Birthday marta :wub:

    I hope that you are doing well and that you birthday was (yesterday ?) As awesome as you are :hug3::hug3:
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    Re: Happy Birthdays Thread

    Hi gilders :hug3: I hope you still had a joyful birthday in spite of the restrictions.

    Do I remember correctly that you got your new kidney around your birthday ?

    Can your wife switch to...
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    Re: Happy Birthdays Thread

    Happy Birthday @Pete and gilders from @pberggren1 and from me. May you have an awesome day.

    Not sure how bad is the covid at your area and how you can celebrate your day but I hope it will be...
  10. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Welcome to the forum, Gary. I think you must get second opinion from the best experts possible.

    I live in Israel but my WG dr. Consults with prof. Jayne in Addenbrook. I tag @Geoff and...
  11. Thread: Happy Birthday

    by Alysia
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    Re: Happy Birthday

    Yes, Anne, chocolate works well for me :biggrin1: cheers :hug3:

    (Thanks for your kind words... :blushing: )
  12. Thread: Happy Birthday

    by Alysia
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    Re: Happy Birthday

    I came to the forum to wish Anne a Happy Birthday on the birthdays' thread, but will use this thread now. Thanks Masha.

    Happy Birthday, dear Anne. I love you and I feel blessed to call you my...
  13. Thread: Site statistics

    by Alysia
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    Re: Site statistics

    Haha yes! By a significant number.
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    Re: Recently diagnosed with GPA

    Welcome to the family, Mandy.

    6-8 weeks since the rtx might not be enough to get its full treatment effectivity. You might feel better after 3 months, even your hearing might get better. Also,...
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    Re: Coping with stress on current pandemic

    What helps me to endure ? Only my Faith.

    I pray every morning and during the day when things are too much to bear. I also watch daily livestream Mass and also reflections on the readings which...
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    Re: Coping with stress on current pandemic

    In the last few days as the pandemic is growing in crazy numbers and the **** gov. does nothing, my WG has reacted to the stress. Eventhough I should now be "covered" by rtx and 10mg arava, while...
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    Re: Coping with stress on current pandemic

    Dear DrZ,

    Thank you for sharing your feelings. I understand and I care.

    I copy parts from post that I wrote on facebook:

    The worst thing for me during the pandemic is to find out how...
  18. Thread: Feedback needed

    by Alysia
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    Re: Feedback needed

    Will it keep our private messages from the past ?
  19. Thread: Feedback needed

    by Alysia
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    Re: Feedback needed

    Most important: maybe I couldn't comment because I didn't registered.... thinking so, when I tried to register, I couldn't recall my passward which is kept on my phone. Will we have to recall our...
  20. Thread: Feedback needed

    by Alysia
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    Re: Feedback needed

    Thank you from the bottom of my heart andrew for keeping the best weggie's home working so well and for so many years. I am forever grateful to you.

    I admit, that I am not doing well with...
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    Re: Retuxin infusion

    I sometimes have nausea after rtx. Also having diarrhea for the 10-14 after the IV (but I also have collagenous colitis). Sometimes I also get UTI after rtx. Also feeling sore all over, like after a...
  22. Re: My third anniversary of my Weg diagnosis is today.

    Thank you for sharing, DrZ, and for being here with us all the years. I "hear" your worries considering the covid19 and I understand. We can only be as careful as possible and leave the rest to the...
  23. Thread: Covid-19

    by Alysia
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    Re: Covid-19

    Shalom,

    How is Yosef doing ? And all your family ? How bad it the outbreak where you live ?
    In Israel it is bad and the curve is running high and fast.. they don't care in the **** gov. :angry:
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    Re: pberggren memorial thread

    Thank you so much, gilders and Anne. It means a lot to me.
  25. Thread: Transplant

    by Alysia
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    Re: Transplant

    Thanks for the update, Pete, and for wearing the Bathorse Avatar as today it is also the birthday of our dear Barbara.

    As for your anemia and bowels issues, checking with a gastro dr. Is a good...
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