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    Re: Introducing myself

    Hi @Gram24

    Sorry to hear about your granddaughter. Sounds like she’s having a rough time with it. I hope she can get into remission soon!! Please keep us posted about her progress.

    This is a...
  2. Thread: Covid-19

    by Pete
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    Re: Covid-19

    Steroids reduces the severity and duration of COVIS-19.
  3. Thread: Happy Birthday

    by Pete
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    Re: Happy Birthday

    Happy birthday annekat!!
  4. Thread: Ear Wax

    by Pete
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    Re: Ear Wax

    I went to the OSU ENT Clinic to see what could be done about my ear wax issue. The audiologist found no issues with my hearing aids, but a quick look into my right ear confirmed why I couldnít hear....
  5. Thread: Ear Wax

    by Pete
    Replies
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    Ear Wax

    During the past few months, Iíve noticed that my right ear is producing a lot of wax (cerumen). I had my ears cleaned in June when I went for maintenance on my hearing aids. That helped for awhile,...
  6. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Gary L

    I donít have the symptoms you describe. Hope yours subside soon.

    Where are you being treated? Several people on here goto Addenbrookeís and see Dr Jayne there. They all seem to be doing...
  7. Thread: Telling my story

    by Pete
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    Re: Telling my story

    gunnyl

    Good to hear from you and that all is well!! Hope the good partnership continues and results in good health for you!!
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    Re: Recent diagnosis and new to site

    Hi Lisa,

    Glad you found us, but sad you needed to.

    I was situated similar to you at disease onset. Age 64, pretty fit, and no other health concerns. Iím over nine years in now, and have gotten...
  9. Thread: Covid-19

    by Pete
    Replies
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    Re: Covid-19

    Interesting read...

    Steroid's COVID-19 benefits confirmed; spotlight on immune cells
    https://reut.rs/3hev7Eb
  10. Thread: Covid-19

    by Pete
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    Re: Covid-19

    Pred may be useful for treating COVID-19.

    Another steroid is thrown into the mix of potential COVID-19 treatments...
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    Re: Thankful to find this forum

    DStaelens

    Welcome to the ďclubĒ, Dave. Hope the rituximab proves to be an effective therapy for you. Reading through your symptoms, I thought that there are many folks on here who can relate. The...
  12. Thread: Retuxin infusion

    by Pete
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    Re: Retuxin infusion

    My rituximab infusions have all been non-events. Iím restless the night of the infusion and a little tired the next day, but that has never interfered with anything I wanted to do.
  13. Thread: Covid-19

    by Pete
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    Re: Covid-19

    Aneinu

    Here you go: https://www.wegeners-granulomatosis.com/forum/threads/6046-Coronavirus-and-GPA?p=116399#post116399
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    Re: Coronavirus and GPA

    richard052018

    The ER doc told me to follow up with my PCP. We discussed kidney findings. Scarring and thinning are wegs related and likely causing my elevated creatinine and depressed eGFR. Cysts...
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    Re: Coronavirus and GPA

    I had to go to the ER this past Sunday evening. I had fallen off a low step stool on Friday and glanced off a drain pipe on the way down. I think I bruised the ribs on my left side. Saturday and most...
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    Re: Where is Everyone?

    Itís been kinda quiet in my part of the world. Ohio has opened up too much and too fast, and we have big spike in new cases as a result. Iím sure the riots in downtown Columbus a couple weeks ago...
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    Re: Coronavirus and GPA

    Glad to hear youíre on the mend. Hope it continues.

    It seems Israelís politics are as messed up as ours in the USA...
  18. Thread: Haircut

    by Pete
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    Re: Haircut

    @Alysia

    There’s an old saying that the difference between a bad haircut and a good one is about two weeks. Glad to hear your cosmetology skills are improving...
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    Re: Coronavirus and GPA

    richard052018

    Where did you get your mosr recent infusion? Iím going to Cleveland in September.
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    Re: Coronavirus and GPA

    A glucocorticoid seems to be effective at mitigating the effects of coronavirus. I wonder if prednisone would be as effective?

    https://apnews.com/89d963958b042cc921e64ab3eff5a74d
  21. Thread: Haircut

    by Pete
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    Re: Haircut

    Hilarious!!!!!!!!!!
  22. Thread: Haircut

    by Pete
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    Haircut

    Got a haircut today for the first time since March 18. I was pretty shaggy. Every other chair in the salon was kept vacant. Everyone was masked. Hand sanitizer was available and being used. I was...
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    Re: Prednisone, Diabetes, Flare

    Came across this bulletin from Cleveland Clinic:

    https://health.clevelandclinic.org/8-prednisone-side-effects-how-to-minimize-them/?utm_medium=social&utm_source=facebook&utm_campaign=cc+posts
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    Re: Coronavirus and GPA

    My wife and I went to the OSU satellite center in Upper Arlington yesterday for labs. She has autoimmune hepatitis and was a month overdue for labs. I was two months overdue for mine.

    When we...
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    Re: Diagnosed yesterday

    JenPNW

    Welcome to the club nobody wants to join! Iím glad to hear youíre responding to treatment. I donít know where youíre located, but I hope you have reasonably easy access to a doctor with...
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