Arrrgggg! Its got me..... or is it I got it?

Hi Hammy,

Welcome! I concur with the "slow and steady" advice. Believe me, I fought it for a while, but then starting to listen to my body and not worry about keeping up and I feel good!
Lisa Coffeelover

Coffeelover are you in remission yet? Sorry I can't remember.

I wish....but no! I had a very short supposed remission....but flared up rather quickly and I now have stenosis again, but not bad enough to have surgery. Darn Flares!
My goal is to not have a trach put in again...so I am going to behave and succumb to this disease. It may be winning now, but I will win in the long run.

Thanks for asking. How are you doing?

"It may be winning now, but I will win in the long run"

Just how I feel coffeelover. Having tried 'Ha, I'm not really ill and I can carry on as norm' method, I am quickly realising that i have to play along with Wg to hopefully beat it!!

Oh thanks for your welcome, love your aviator... are you really that cute??

I am doing ok, just know that I am boderline to going into remission, but can't quite make it yet. So I see the Wegeners specialist in a few weeks. So I will talk to her soon. Just having sinus stuff like a cold on and off....so wegeners is still active. The good news is no lung nodule and my left eye swelling improved. I found out I have cataracts. Thanks for asking.

Hi
I think I have finally decided to accept the disease too. I pushed it a bit this week to try to be "normal"and ended up with lots of joint pain, head pain and extreme lethagy. Instead of looking at this as a negative Ive decided Im going to be a "spontaneous" person. If I feel okay on the day I will do, if not I wont. Given up making plans and cancelling. Im finally learning to listen to the body. ( I do wish it would stop groaning). Trying to hang in there on the taper to 15mg of Pred.
cheers Col 23

Quote:

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Originally Posted by Hammy8241

"It may be winning now, but I will win in the long run"


love your aviator... are you really that cute??

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Yes, she really is that cute!

Quote:

---

Originally Posted by Hammy8241

"It may be winning now, but I will win in the long run"

Just how I feel coffeelover. Having tried 'Ha, I'm not really ill and I can carry on as norm' method, I am quickly realising that i have to play along with Wg to hopefully beat it!!

Oh thanks for your welcome, love your aviator... are you really that cute??

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Honestly, I am not at all cute...but have always had a passion for tweety!
Lisa

Quote:

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Originally Posted by elephant

I am doing ok, just know that I am boderline to going into remission, but can't quite make it yet. So I see the Wegeners specialist in a few weeks. So I will talk to her soon. Just having sinus stuff like a cold on and off....so wegeners is still active. The good news is no lung nodule and my left eye swelling improved. I found out I have cataracts. Thanks for asking.

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Keep moving forward elephant! I am rooting for you!

Thanks Coffeelover!