UNC Kidney Center
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Here's a cool link that Leah posted on Facebook, so I'm stealing it for my blog and also for here. Very interesting representation of what's going on inside. Check out the slideshow AND the animation.
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Another good fact sheet about Wegener's - Wegener's Granulomatosis
I'm looking at setting up a UK based site, after my partner (on here as lili) found out about the cluster of cases here in South Wales. I've only just started looking at links, but have found these so far:
St Thomas' Wegener's Trust
Wegener's Granulomatosis Support UK ? Wall | Facebook
Wegeners-UK
The last link is my site, which is pretty bare at the moment, so I'll be asking for help with it soon :flapper:
Obviously, I don't want to tread on any toes, but I think that localised information will be very helpful, especially for those of us who like to meet face to face, or know that there's someone else in the same situation nearby :smile1:
That sounds like a good idea Tippon. I always enjoy meeting new Weggies.
This is an excellent website for figuring out what your lab tests mean.
Lab Tests Online: Welcome!
Vasculitis-Education : Vasculitis Education
This is a great "news" site started by a gentleman named Jim, that suffers from Central Nervous System Vasculitis. He posts news sites and medical posts on a daily basis, as they pertain to Vasculitis. Some are technical, others are anecdotal. Sign up, and you receive a compilation every day.
This reminds me I have a dentist appointment in the new year.