Any supportgroup or WG doc here in Vancouver?
Printable View
Any supportgroup or WG doc here in Vancouver?
I remember talking to a WG patient by the name of Monika Martens in Kelowna and I think she was the founder of the Okanogan WG support group. As far as any docs go I have no clue. I can get Monika's number if You like.
I certaily would, thanks. Kelowna is just a couple of hours drive.
I don't know if these numbers are current. It was about 6 or more years ago I talked to her.
250-222-3163 or 250-869-0924
You might want to get a hold of Donna Wall with the Canadian support group.
877-572-9474 or 519-653-8030
I think Donna may know of a Wegs specialist in Vancouver area. I heard of Simon Carret in Toronto.
Jolanta may know of someone as well or even Germaine. There are a few others I cant remember right now that also have WG in BC.
Thanks a billion and while I remember may this year be a good one for you.
The nurses who tended to my toe gave me a doc who was supposed to be WG spec, but by now I think I know more than he :)
Moyan
They probably think any rheumatologist is a Wegs specialist. Regular rheumys can handle a lot of autoimmune diseases but not Wegs. We're just too weird. :)
My last note seemed to disappear, so here it is again maybe. The general contact for the support group in Vancouver is WG Support Metro Vancouver wegener'[email protected]. I also have personal email addresses which I don't like to post on line, if this doesn't work. Perhaps Andrew can help us with this.
Thanks!! You can call me collect if you want. I have a peculiar telemarketer answering message, so let that go throu. 778 278 3004
I always bemoan not having a specialist, i don't think there are any real specialists in Vancouver, only rheumys that treat a few weggies.
Hi Jolanta, Germaine knows about a supportgroup in Vnacouver and that would be a step in the right direction. She gave me an e-mailaddress, but unfortunatly that took me nowhere. Asked her to call me collect. Phil B also gave me a couple of # to people with WG. Still trying them. One is not active any more but the other one might be. Have had a bad month with spinning thoughts :)
Hope you are all right.