Originally Posted by
duffybear
Lisa - Thanks so much for responding so quickly (yay!). As mentioned, I was only diagnosed about 2 weeks ago, and kind of by accident, so I don't seem to have much of a plan at this point (viz. no WG doctor, hard to find a few days before Christmas!). (Long story short - progressively sicker and sicker in Fall 2014 with sinus problem, cough, laryngitis, sinus infection, never got better even after antibiotics and 1 month off work, sudden major joint pain onset, swollen thyroid, gums all swole up, finally saw ENT on Dec. 12 who freaked out over crusting in my trachea, sent me to VGH ER - I live in Vancouver - where I had bronchoscopy 4 hours later, respirologoist saw me Dec. 19 and gave me diagnosis, put me on prednisone (that's all right now), am due to go back to respirologist on Monday Jan. 5. I know I need to hone in on them about who I should see, also - although respirologist described my condition as "mild", do I need other meds? Etc, etc.) Thanks for the names of a couple of rheumatologists here in town - my GP (in her 50s) has never had a patient with this. At this stage, the prednisone has helped with about 90% of my symptoms (thank heavens, I was SO sick), so I'm not feeling too bad right now. I look forward to any updates you have on a get-together!