Originally Posted by
me2
Welcome GGHT ,
I have had brain a central nervous system involvement. On an MRI my brain lights up like the milky way with a cloud of small strokes that I have had. Some of them I remember as events where I was confused and had visual problems.
l find it hard to tell the short story on this but the long story would require a book. I also have cerebellum involvement. Apparently there is not way to image this but it was a severe problem for me.
I had 'attacks' that felt horrible and I could not describe. I ended up in a wheel chair and it took me a couple of years to be able to walk to my mail box and back. All the while the docs are pretty much just shrugging their shoulders and saying they have no treatment except to treat the Wg's and hope the other stuff gets better.
Well, it has been about 14 years but I am pretty much normal again as far as being able to walk. 'Normal' people cannot seem to tell I have some deficit. I was very active before and I can still tell that I have some trouble- but I am not complaining . I can go for short hikes, garden, bicycle etc. and I have hopes of improving even more.
Oh, and I had serious vision problems that the 'big giant heads' at my University hospital eye clinic had never seen before or even read about - lucky me.
The good news is I have 100% recovery from that and only have twinges of vision trouble when I get sick with other things that aggravate my existing damage or a flare of the WG's . Other than that I am
A- OK.
Keep us informed here of how you are doing and what kind of things you are dealing with. Welcome to the party. I am glad you are out of the hospital and doing better. The brain has great plasticity and I would have high hopes of a great recovery for you . Be patient but also persistant. Some kind of Zen thing maybe... hahaha
I too eat an anti inflammatory diet. I think these things help - certainly can't hurt.