Originally Posted by
annekat
Lindsey, my pulmonologist also doubted that I had Wegs. There was no large nodule involved, just a lot of smaller lesions. He was proved wrong by a nasal biopsy. Sometimes they are just stubborn. I know of at least one person on here who had a large lung mass thought to be cancerous which turned out not to be. I think it turned out to be a rare, non-cancerous tumor. However she DID, and does, have WG. I would not give up if you think your dad may have it. As far as whether the mass should be removed, and under what circumstances, that is beyond me to judge. Best of luck, and continue to be persistent and proactive for your dad. Get a second opinion if you can and feel you need to. Although I guess you still have a biopsy to get results from. If your rheumy continues to doubt it's Wegs, maybe try a different one. I would think a biopsy of the gums would not necessarily be conclusive either way, and just the language that was used by the pathologist should not be a reason to write off the possibility. Some of us on here have really had to push to get a diagnosis.