To everyone **PLEASE READ**
To new people,
First, welcome to the Wegeners-Granulomatosis.com support forums!
We’re happy to have you here!
Please introduce yourself! Let us know where you're from, how long since you've been diagnosed, how you're doing right now and anything else you'd like to say by way of introduction.
If you have any questions, Moderators (mods) and Administrators (admins) will be glad to help. All the mods and admins suffer from WG too so we can relate :-) Mods and admins can be identified by their usernames being a different colour from everyone else. Also, if you're wondering how to interact with this forum, you can find an FAQ here.
There is one central rule we have here that we all must abide by. It's simple. Treat each other the same way you would like to be treated. In other words, be nice to each other!
If you're confused about which category to post in, don't worry! No one ever bled to death from posting in the wrong area :-) If it needs moving to a more relevant area then one of the moderators or admins will do it. Above all...don't stress. Again, if you have any questions, just ask one of the mods/admins.
We really love our members, really! However what we don’t love, is spam.
Spammers will not be tolerated. Period. Spammers will be banned.
That's it! Please enjoy your stay and I hope this message finds you well!
To our new weggie, STW of Houston
Quote:
Originally Posted by
STW
I was wondering if anyone knows if there is a guideline for how long you can expect to take prednisone. I believe that taking it makes keeping my emotions under control rather difficult. That is not great in my line of work (lawyer). Not a great idea to be so angry. Seems like either I'm angry, sad or pretty depressed.
This could be because I got diagnosed on 4/2/09.
I want to know if I will hear OK again and not walk like a drunken sailor. I want to know if I will ever get to be me again. I want to be able to walk my dog and walk into a room and hear what is happening in all of it. I just want to be regular again.
Please excuse the whinning. It was a rough day for me.
Also I don't understand about threads and who receives what I write. Could someone explain.
STW
All members can read and comment in this forum. Some have created alias for purposes of the forum, others have used their names. Also, anyone who finds this forum can read it, but, unless they register, they can't add comments.
ALSO, and this may have a great deal of meaning to you professionally, anyone who Googles your name can pull up your comments, read the forum. Even if you use an alias, people clever enough to snoop may be able to figure out who you are, etc.
I don't know that you don't want to backtrack, re-register under an alias, and see if Andrew, the Webmaster, can't delete your name.
As for your initial entry, you can edit it. Specifically, you can remove anything you feel might be detrimental to you professionally, by selecting it and hitting the delete key.
"Threads" and a series of comments linked by a common thought (thread!), simple enough. I'm still working through that myself. I'd suggest going to the Home Page, selecting each topic, and reading through them.
I don't want to be self-promoting, but I just learned how to YouTube, and three of the videos have to do with the impact of Prednisone on you (certainly me). Two are based on a little notebook I call my "krazy book". If you watch the videos (links are in the section identified as "I got a new webcam today", I think it is, third topic from the bottom- just double-left-click on them) I posted on You Tube, some of your answers can be found.
Also, I recommend you Google Vasculitis Foundation. It's another place you can find lots of information, from the patient's point of interest, that many of us touched on when we were at your stage. In the meantime, this this the place for you to unwind, if that is what you need. We've all been through what you are experiencing. Some of us are still in the Prednisone stage (not me, thank God!), so you will have plenty of sympathetic readers whotruly, know what you are going through.