Originally Posted by
gilders
In brief, a sudden drop in kidney function can often be reversed with the correct treatment, whereas slow chronic decline in kidney function won't be reverseable.
The very best way to look after your kidneys is prevention of relapse/flare of WG/GPA as this is what damages your kidneys. The next most important is keeping hydrated and keeping blood pressue in heathy range. Beyond that, little else matters.
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Back to my condensed kidney journey. Each relapse/flare I had led to more permanent damage to my kidneys. After multiple relapses my kidney function stabilised at 18%. My nephrologist advised me that even without another relapse my kidneys would slowly lose their function (I was beyond the point of no return). This happened over many years and I had a transplant March 2019.
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Try not to worry too much about your kidneys. The one thing you do need to do with the nephrologist is to make them aware that your kidney function dropped rapidly, so you should have frequent creatinine blood tests even if you feel fine. Most people don't even know they have kidney problems until their function is below 15%, so don't worry about it, but don't leave it too long between blood tests.