Tracheal Stenosis & Negative ANCA
Hi There, I'm replying to this thread because of the title caught my eye. It's what I can really relate to. I'm 35, and a single mom of a ten year old. So my life feels like it's been on hold for the past two years. The only recognizable, life-altering symptom I have is the subglottic stenosis...like the subject heading, ANCA tests (2) have come back negative so far...I've been having allergy or cold-like symptoms for a while now...but no pus (or sinus issues beyond hay-fever like severity). I've attributed this to dust allergies as I have been tested for environments things and dust/pollen were culprits in the results.
In November, the narrowing was so bad that I had to get dilatation just to be able to function (I was at 40% air capacity). No running, walking fast, moving fast...I had the procedure done in December and felt great for a little over a month (some of which was heavily medicated due to post-procedure). Presently, the narrowing is returning.
I guess I'm just looking to see if anyone else has had these "limited" symptoms of Wegener's? I have yet to be diagnosed for this, and have been referred to a Rheumatologist to either confirm or rule it out... Also, is anyone else struggling with depression due to life being altered (and feeling trapped in their own bodies)?