Hello everyone : I'm a newbie to the group !!
I'm Jayne
Living in Worcestershire 44 and recently diagnosed
Been using this great site to get to grips / understand the journey ahead !!
Glad I know why my nose looks crazy !!
Still feel like myself and am determined to continue to be A Glass Half Full Kinda Person on this journey 👍👍👍
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Hello everyone : I'm a newbie to the group !!
My story ??
Well my beautiful HUGE Neopolitan Mastiff ( 12 stone ) jumped on me and 1 paw landed on my nose about 2/3 years ago
Massive nose bleed trip to A & E and nothing obviously broken so see how u go they said
So my nose I was now aware of seemed to not be quite right , swelled & in an odd shape but I just put up with it & thought it would eventually go down . It didn't . After my gums went crazy sore & bright red a dental biopsy was taken and no obvious causeways found and my fingers /toes suffered cold badly. Asked to see an expert .
The nose man said it was the worst nasal injury he had ever seen he couldn't think what to do so as a last resort recommended I saw the best nose man in the UK
Thank God
I explained what had happened and within 5 minutes the lovely amazing guy , at st thomas & st guys london David Roberts said NO THAT'S NOT YOUR DOG YOU HAVE AN AUTO IMMUME DISEASE : let's work out which so then referred me to Prof De La Cruz the best man in Europe
It's Wegners he said !!
And here I am
Nasal destruction hence the saddle nose but kidneys / liver all good
So MTX to get under control - starting this weekend
And steroids antibiotics & vitamin d & frolic acids
I can't wait till my nose looks normal & I can smell again ( a girl can dream )
Have had a few rough days but feel confident I can beat / understand this disease
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