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I'm a member of this group, I was diagnosed with Wegeners in 2013.
I was just diagnosed yesterday with MDS(Myelodysplastic Syndromes) it's a disease of the bone marrow. I honestly believe I ended up with this because of the Imuran that I've been on for almost three years!!! Has anyone gone through this, just curious!!
Thanks in advance!
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I’ve not heard of that but I’m less than 2 years in. Watching though as I’ve been on imuran for maybe 20 months. 100 mg now as I’m almost off of prednisone.
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I've been taking 150mgs.Quote:
Originally Posted by Keith
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I have taken 175-200 mg for 8 + years.Quote:
Originally Posted by Dorothea
ThanksQuote:
Originally Posted by drz
My doc had told me not to worry, they had many others on higher doses with no issues but I didn’t have a feeling of the magnitude.
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Have you had a flares?Quote:
Originally Posted by Keith
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Thankfully no. How about you?Quote:
Originally Posted by Dorothea
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Yes, I was on dialysis for 2 months, my kidneys are only at 25%. That was three years ago. That's why I'm on Imuran. I'm afraid now that I have MDS it might set me up for another flare!Quote:
Originally Posted by Keith
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