Originally Posted by
Marius
Hi all
Thank you so much for welcoming me! It feels great to not be alone out there anymore. The doctors made such a fuss about the rearity of this disease that I was left feeling all alone and dreadful. This forum is absolutely great for gaining knowledge about WG and learning from people also suffering from it. Although a bit gross, I loved the thread about boogers! The same stuff comes out of my nose - and again it made me feel so much better that it's not just me.
I use a sinus rinse for my nose, but I think I was over doing it a bit as I now have an infection in my left ear. Luckily I'm seeing my ENT tomorrow, so hopefully he can do something about it. Although this ENT was great in making the right diagnoses right away, he admitted that he has no experience with this disease and referred me directly to an Internist. My problem is that between this Internist and the Rheumatologist, nobody seems to want to take charge and both wants to be seen more as in an advisory role. Perhaps this is why I am currently on both MTX and Imuran. I will definatly take this up with them.