Originally Posted by
Joanne
Hi Alysia, thanks for your message and the list of names. I've started a new thread as you suggested to try and find more info about a good ENT consultant/hospital. I found it really interesting that you had two nose biopsies before you got a diagnosis. My main concern is that nothing is showing up on my results -biopsy, bloods, scans, x-rays, no inflammation, although the biopsy was in 2012, and the last hospital tests I had were over a year ago. I have also had anemia and chronic Vit D deficiency which were successfully treated with no improvement in my symptoms, so I'm really stumped? I also registered with a new GP recently and they did a raft of routine tests for new patients which just showed up a fluttery heart and high blood pressure (probably stress!!). I get the impression that this is not an easy condition to pin down! I'm also looking at the Vasculitis Health Unlocked site which another member recommended, which looks very interesting. Thanks again for your invaluable help.