Originally Posted by
MaxD
Skempins,
How recently were you diagnosed, what is your current prednisone dosage, and what other medication are you being treated with? Are you seeing a GPA specialist, or is your rheumatologist consulting with one? If you're only on prednisone, that's not sufficient.
I had a lot of pain in the upper part of my nose before I was diagnosed, and I too was terrified it was going to fall off or something. Once the high dose prednisone kicked in (I started at 75mg for almost a month until my first Rituxan infusion, after which I went down to 60mg right away) the pain was gone.
Worry and stress are a large part of our disease, and what docs can't manage for us this forum may help with - so ask away!