Re: Gastro. Issues - Others?
Please try to get an appointment with a rheumatologist who specializes in wegs. You can find a list on the Vasculitis Foundation’s website. I think you’ll find they (1) know more about the disease and (2) are better able to understand your body as a complete system.
Re: Gastro. Issues - Others?
I agree with Pete get a rheumatologist who is a specialist with GPA
Here is the link fron Vasculitis foundation of doctors https://www.vasculitisfoundation.org...l-consultants/
or https://www.vasculitisfoundation.org/map-2/
Re: Gastro. Issues - Others?
I am sorry, Helen, that you suffer from more issues. WG alone is sure enough.
I have in addition to WG a second rare AI disease, collagenous colitis. After seeing about 7 gastro docs I have found a decent one who gave me a good treatment.
Try to make a diary of your nutrition to check which foods are related to your symptoms. Dairy free for example makes me feel much better.
I know how hard it is to be both sick and searching for a decent dr. Dont give up. Eventually you will find. Sending you prayers. Please update us.
Re: Gastro. Issues - Others?
Quote:
Originally Posted by
Alysia
I am sorry, Helen, that you suffer from more issues. WG alone is sure enough.
I have in addition to WG a second rare AI disease, collagenous colitis. After seeing about 7 gastro docs I have found a decent one who gave me a good treatment.
Try to make a diary of your nutrition to check which foods are related to your symptoms. Dairy free for example makes me feel much better.
I know how hard it is to be both sick and searching for a decent dr. Dont give up. Eventually you will find. Sending you prayers. Please update us.
Can the medications we are taking to control GPA cause gastritis and other ailments?
Re: Gastro. Issues - Others?
Quote:
Originally Posted by
seied
Can the medications we are taking to control GPA cause gastritis and other ailments?
Prednisone. Just google pred' and gastro and see what pops up. You probably could live longer with a heroin addiction than continuing to pop prednisone pills like M&M's.
Re: Gastro. Issues - Others?
Quote:
Originally Posted by
Bing505z
Prednisone. Just google pred' and gastro and see what pops up. You probably could live longer with a heroin addiction than continuing to pop prednisone pills like M&M's.
:lol: I just love consuming my preds :flapper:
Re: Gastro. Issues - Others?
Quote:
Originally Posted by
seied
Can the medications we are taking to control GPA cause gastritis and other ailments?
Good question. In my colitis group many friends have developed their microscopic colitis as a result of long term use of some meds. They didnt mention our meds, as far as I remember, but others. I know that cellcept might cause some kind of colitis although temporary. I wondered which med caused my colitis but I am not sure. Maybe the omperadex which I took with higher preds ? It was mentioned in my colitis group as a possible cause. What I also saw in that group is that many friends have more then one AI disease.
Re: Gastro. Issues - Others?
Quote:
Originally Posted by
Alysia
:lol: I just love consuming my preds :flapper:
:smile1: Well mazel tov! Bon appetit! Onward and Upward! Cheers!:smile1:
Re: Gastro. Issues - Others?
During my journey to find all the areas that the Wegeners might have affected, I was sent to a gastroenterologist. The young lady said she had never heard of Wegeners but did some research prior to my appointment. She said "good news, bad news". The good news was that Wegeners does no affect the stomach. The bad news ... the meds have a devastating effect. How you take them can help. (with food or water, and when). Since I did not want to add any new drugs that she suggested to my daily group of hors d'oeuvres, I followed her suggestions and eliminated any problems that I had been experiencing. It has been a few years since and no further effects.