Originally Posted by
richard052018
Alysia,
Thanks for getting back with me. Yes, I got 1G RTX back on Dec 11th.
This is such a weird disease. Urine labs are fine, inflammation labs are fine, but creatinine is steadily getting higher. My doctor has always preached that before the kidney blood labs go bad, your urine labs (re: protein/blood, red cell casts, etc.) will go bad first. I haven't had a bad urine lab since some blood in the urine around the time of diagnosis.
If we can get this under control, is there any chance of the Creatinine/GFR going down? The literature on the web is mixed (Acute disease typically heals, but Chronic disease does not). Not sure if I'll qualify as acute or chronic.
I ordered a renal panel and ESR today from LabCorp to take to my doctor on Monday. They hate it when I order my own labs though.
Thanks Again,
Richard