Originally Posted by
Birdie
Welcome Aneinu,
You can relax a little bit worrying about treatment. It's very effective and usually controls Wegener's fairly quickly. Treatment will likely stop further damage long before Wegener's is under control, immediately in my case.
So, learn as much as you possibly can about everything surrounding Wegener's and the medications and medication options. You can't know too much. You need to understand what the doctors tell you, test results, symptoms, new symptoms, also options for treatment. It's a lot to understand so come here with ANY questions. You'll get first hand experienced answers.
We'd also welcome your son to this group if he'd like to come hang out with us.
Gary