I lady I know on Facebook, that is originally from Canada, has started a vasculitis support group on facebook as well as a face to face group that meets regularly.
Here is the link to the facebook group:
https://www.facebook.com/groups/301051746623018/
And for those of you not on facebook her e-mail is: [email protected]
She said anyone can e-mail her their phone number and she will call them back.