Aiming for drug free remission...
After being on MTX and leucovorin for several years, I am aiming for drug free remission. After having been on a holiday from MTX for about a month, I can say that I have not felt this good in quite a long time. I have "limited" GPA, and still have symptoms in my ears and nose, but those symptoms are due to the damage done by my initial, acute phase of illness. I never had lung or kidney involvement, so I have been pretty lightly touched by this crazy illness compared to many others on this forum. Nothing in my labs suggests any ongoing, active illness. I certainly know I am facing a risk of recurrence, but also that the risk is pretty much unquantifiable. I am just so tired of my self administered injections, the labs, the constant vigilance and worry. Now the fact that I feel noticeably better without the meds might be at least partly psychological, but in any case I do feel better.
I would be interested in hearing from others who are in or are attempting drug free remission... success? failure? issues?
Thanks.
Re: Aiming for drug free remission...
Quote:
Originally Posted by
me2
I had a 20 year drug free remission after two years of treatment.
Wow 20 yrs! that's such good news. There is hope :) I have limited gpa so I am hoping to be like you, let's just get this under control and be able to feel good and more forward once again. My first blood work for the next year is tomorrow. I am still learning what all these blood test mean and what it can tell the doctor.
Re: Aiming for drug free remission...
Vdub, you've become our bionic man! ;-)
Re: Aiming for drug free remission...
@vdub, do you think that its the wg causing your fatigue etc. or other issues ? Are you still in remision ? I think that you shouldn't avoid your rheumy or neglecting getting the right treatment. Please forgive me for behaving like a worried mom. I care about you. Honestly.
Re: Aiming for drug free remission...
Thanks, Alysia... Weg's is just one of my problems. Mayo believed that the fatigue and muscle pain was from fibromyalgia and its a constant battle, but better now that I'm on the right drugs. But, there is still something else that is attacking my central nervous system. Most docs agree that the cns issues aren't wegs related and aren't coincidental.
Remember the "sinus infection" that most all of us had prior to being dx'ed? I've been having that again for the past couple months, but its not to bad, so I just deal with it.
1 Attachment(s)
Re: Aiming for drug free remission...
Quote:
Originally Posted by
vdub
Thanks, Alysia... Weg's is just one of my problems. Mayo believed that the fatigue and muscle pain was from fibromyalgia and its a constant battle, but better now that I'm on the right drugs. But, there is still something else that is attacking my central nervous system. Most docs agree that the cns issues aren't wegs related and aren't coincidental.
Remember the "sinus infection" that most all of us had prior to being dx'ed? I've been having that again for the past couple months, but its not to bad, so I just deal with it.
Come on @vdub, dont let the dumb docs fool you. There is NO sinus infection in Fybromyalgia ! And cns issues are too serious to dismiss like that. Get a second opinion. Besides, you know yourself better then any dr. What do YOU think ?
I would say that your wg is smoldering if not already flaring. I would send the mayo docs straight to hell and find a decent dr and get a decent treatment.
I might be wrong. @mishb @marta what do you think ?
Others around, what do you think ?
Attachment 2634