How to tell if dietary changes are effective
When my 15 year old was in the hospital someone sent us an article about anti-inflammatory diets. It is hard at 15 (and would be for me) to be motivated to change your diet drastically, to give up entire food categories that you like, if you can't tell if it would really make a difference.
My daughter's lab work is normal now (except protein in the UA-+1 or trace) and the creatinine/protein ratio(I think that is the name of it) which is 1.1. Also B cells are 0 from rituximab. And she feels great. It seems like it would be hard to tell if the diet was helping anything.
How do people know that these diets are helping?
Thanks,
mater
Re: How to tell if dietary changes are effective
I am on a strict anti-inflammatory diet and have chosen to treat this without meds. I know this forum seems to be pretty stern for those who choose a different course of action; hence my hesitation to post even though I joined almost two years ago, but I want to let others know we are out here.
Re: How to tell if dietary changes are effective
Quote:
Originally Posted by
JustMe
I am on a strict anti-inflammatory diet and have chosen to treat this without meds. I know this forum seems to be pretty stern for those who choose a different course of action; hence my hesitation to post even though I joined almost two years ago, but I want to let others know we are out here.
What do you mean by "we are out here" ? Who are "we" ?
You claim to have wg and treat it without meds but you didnt introduce yourself and didnt tell your story. How can we know that you are not a sharlatan ?
I am glad that @vdub, or was it @andrew removed your other thread yesterday. I am sorry if I sound "pretty stern" but you must understand that you cant play with WG and sure cant treat or heal it without meds. We have lost too many friends in our wg family. Wg is taking life. We cant allow "advices" like yours to hurt anyone here.
Re: How to tell if dietary changes are effective
I did not see the other thread, but I just wanted to let everyone know how I am doing.
For the past 8 weeks I have had much better pain relief, just by a change in diet.
By avoiding all foods that trigger inflammation in me (may not be the same for you), my blood results are pretty close to the normal range now.
I'm hoping that I can get them within the normal range when I have my next test in 3 months time. We do know though, that WG is unpredictable.
I am still on 20mg Methotrexate, 200mg Plaquenil and 1mg pred and I agree with Alysia that the medications are very important.
I don't believe that my wegs is under control because my sinuses and throat are still stuffed, but the joint pain is very mild now, and can be eased more just with some paracetamol. A proper balanced diet is a must I cannot take any vitamin supplements because they affect my liver.
The foods I now avoid, if you are interested, are pasta, rice, all nightshade vegetables (which includes potato, which was my absolute favourite) and anything that is related to the citrus family, or has citric acid in the making of it (have to read those labels carefully.
Re: How to tell if dietary changes are effective
Vdub said it loud and clear 11-15-16. Food fads come and go. I have friends who are retired RD’s. And oh the stories! Common sense tells us what is good and bad for our health. BUT, I must get my two cents in.There is NO food cure for Wegeners. It is a vile, dangerous disease. Alysia has lost a dearly loved one to it. Others have spent months in hospital.
Our lives and the lives of our loved ones have changed. Honestly, a Friggin Food Cure!
We may not be doctors, but we encourage each other to go and ask questions. This site has been my lifeline and my information center. I hear good stories of remission, vacations, normalcy resumed all after traditional treatment. There is good medicine available to us. Some may not have the means for it, but others have given them resources to turn.
One recent trick an RN told me about when I was complying about my pie face-tumeric. Loud and clear, this is not to replace your steroid, it is to be used to bring the puff down. I have been using it, not a miracle, but it helps.
Like so many of you have said there are foods to avoid while on Prednisone. I avoid all fast food, fried food, limit red meat. When it comes to sweets, I do not deny completely. For me it is better to have an occasional cupcake, than deny myself and go haywire with a dozen. Sweets and steroids are a bad match, so I only take protein prior to Prednisone. If pasta, potatoes and rice are in your DNA, then use moderation.
JUST ME, since you have been on this site for two years, then you know what we are all about. We have opened our hearts to each other and given counsel. Since you ‘know this forum to be pretty stren for those who choose a different course of action.’ Your words verbatim. Then why are you here?
Re: How to tell if dietary changes are effective
Just to give an update. I'm still doing great while continuing to follow my doctor's dietary advice.