Design Stage Feedback

Hi everyone,

It's Marta...the one with the perpetual flow of crazy ideas.
I'm working on a new one, and would love some feedback.

As a background, I should tell the newer people on here that a few years back I put together a small ten question survey that with the help of Andrew's promotion on here, got just over 1,000 Weggie respondents, and subsequently was used to publish an article in a French Rheumatology Journal supporting the fact that patient driven data is just as reliable as official research driven data. So thanks to this site, Andrew, and it's users, we are that much further in validating our knowledge and experience as research worthy.

Now... my new crazy idea.

I would like to build an app for people with autoimmune disease. In my experience, the issues we are having are pretty much duplicated in the over 140 other autoimmune disease groups and by bringing attention to the disease as a whole, we will have not only more visibility, but also a greater chance of finding a cure. If a cure is found for MS, or Lupus, or RA, then a cure is found for us and vice versa. That is if it is a true cure, addressing the etiology of autoimmune disease where the immune system turns on healthy tissues. That being said, I think that if we build an app that can help the patient with their everyday life with Wegener's, we can also help a number of other patients dealing with other autoimmune diseases. While helping patients in the foreground, we could gather data in the background that could help us in our goal to educate researchers, to motivate legislators and funding with metrics, and to bring this disease to the forefront of cultural awareness. We are with autoimmune today, where cancer was in the 70's. The general public (and even some medical practitioners) are quite clueless as to the scope, the cost (both financial and human,) and the potential positive gain society can accrue from eliminating this disease. By gaining these metrics (excluding personal information) we can move our cause forward a hundred fold.

So here's my question for you. What kinds of elements would you like to see in an app that helps you deal with your Wegener's?
Below are some ideas to get the communal brainstorm churning.

Disease:
Diagnosis
Date of diagnosis
Age at diagnosis
Family history of AI disease

Meds:
what kind
daily reminder
reminder for next purchase
supplements

Doctor's Appointments:
Dates
Transportation to and from
Who's coming with you
Questions to ask
Notes from doctor's visit
What specialists are you seeing

Cost:
meds
getting to and from doctors appointments
parking
homecare
living aids
therapies
special foods

Food:
special diet requirements
delivery

Work:
time off
family taking time off for support
required paperwork
human resources/bosses contact
tax info for later deductions
retraining for new line of work

Symptom tracker

Physical rehabilitation

Emotional/Psychological rehabilitation

Support groups and contacts

... and of course have the option for more than one disease since as we all know, if you have one autoimmune disease, then you're more likely to acquire another flavour of AI disease.

So there. Here's the start and idea fodder. I have a few thousand dollars to play with from our foundation, and I'd love to use it wisely so that we can start getting the attention we need to further our cause (that being a cure.) Unlike many charities that make a business out of being a charity, I'm actually looking towards finding a cure and giving the people working for charities an opportunity to find something different to do - save animals, or feed the hungry, etc. I want to see autoimmune disease eradicated, and at this point in my life, I think this might be a good way to start the process.

Peace out y'all. I can't wait to see the brilliant ideas to follow.

Much love.

Ditto to all of the above. Great idea, marta.

I would also add the following:

* Results of blood tests with tracking of what needed to be tracked.

* Scale for disease activity: it should include specific symptoms for each AI disease and an option to rate them and get some results about the disease activity.

For example, our scale might look like that:

How much do you have the following symptoms, rate from 1-5:

Nose bleeds
Nose crusting
Joints pains
Ears infections
Coughing without production
Coughing with productions
Shortness of breath
Difficulty in breathing
Gum bleeds
Red eyes
Scleritis, episcleritis
Fatigue
Rash
(I dont know what the symptoms are for kidneys involvement because I dont have it, need to add here)

Each one can make at first his own scale for flare, smoldering and remission and then can check from time to time. (Some for example still have nose crusting while in remission and for others it can be a sign of a flare)

* diary of symptoms. You mark one when you have it.

* warning of the app when you collect too many symptoms.

*prayers.

So glad to see you here, marta. I missed you.

Love it! Thanks Alysia... those are great additions.
I miss everyone on here as well, but I've been engrossed in trying to get back to normal since my flare last April, and then subsequent Pulmonary Embolism. I'm off the pred - yaaa-friggin-hooo!!!! but my oxygen saturation is still hanging out in the 'suck wind' department. This too shall pass. In typical form, I want to focus on something bigger than me (which tends to make me better) and this is a great place to start.

Peace.
m

Hey Marta, welcome back :hug3:

Gosh this is way above anything that my brain could fathom, but you and Alysia seem to have a grip on it.

In reply to Alysia's blood test tracker, an easy to read graph of results from one test to the next or year to year etc. (maybe this is what Alysia has just said :unsure: )

Emergency phone contact numbers

Blood group


I'm glad you are off pred, and hope that you have continued improvement

Hey Michelle,

I like the graph idea. I know many patients aren't as 'keen' as us, I was just talking to an acquaintance last night who had a heart attack a few years back and he doesn't even know the meds he's on... he said to me that I look great, and I told him that it's funny how no matter what you look like, you always look great after a bout of heavy pred, to which he replied, "who knows, maybe I'm on pred" to which I felt like saying, "oh, you'd know buddy" but I kept my mouth shut. Ha ha. But I think it would be good to have everything in the app for both the keeners and the blind instruction followers. Who knows, maybe an app would make the latter more involved with their healing process.
And yes, emergency phone numbers. Maybe we could do it so that it has a medi-alert function when your phone is on lock screen with meds and condition and emergency contacts. I like that idea.

Now changing topic to 'continued improvement'

Brian got me an electric-assist mountain bike for Christmas. The best gift I've ever ever ever gotten (aside from my kidling). I've managed to put on over 500km on it since mid January. I can also go and bike with my husband again, which is what we did before I got sick. It was our first date actually, a mountain bike ride together. It increases the output of each pedal stroke, so there is no free ride with it, just a faster ride for the energy output. I can keep up now, and hills are not an issue. We've been riding mostly on the roads, with only a couple of actual trail rides(on snow), but I can't wait to get on the trails once the snow melts. Like I said, best gift ever. It's gotten me out of my pulmonary embolism funk, and outside, and moving. Talk about therapy. The continued improvement continues. ;)

P.S. Here's a good photo showing how you'd know you're on pred.
Attachment 2579
Ha ha ha ha ha.
One month and a half difference.

A bit of your idea mimics the Health app that comes pre-loaded on an iPhone 6.

The pred photos are, well, um, striking, I guess...

Ha ha Pete, 'striking' is a good word for that. Today I call it hilarious, at the time it was more along the lines of annoying. I am almost back to normal - in the face anyways, the body is still trying to catch up.

My ultimate goal with the app is to gather data. It seems the medical profession isn't much interested in working together to find a cure, aside from a few small but significant islands of practitioners, so this could be used to both help the patients, but also help the objective of finding a cure by working together. I have used that health app on the iPhone, and I find it quite lacking. I also use another one that you can alter based on your needs - lumentrails- but the magic of the one I'm dreaming of is that it can have a place to store the unpersonalized data and then the next steps are the truly exciting ones. I get ahead of myself quickly. Ha ha.

Hi Marta...its Always good to hear from you. Glad to hear you are off the pred. Boy what a difference a month makes !
The app sounds like an awesome thing ( leave it to you.. I believe YOU will find the cure !)

I don't know what else you can add,it seems like you have just about everything covered..but I will reread it again and let you know if I think of anything. Stay well my friend and keep on pedaling ! Hugs

Quote:

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Originally Posted by Debbie C

Hi Marta...its Always good to hear from you. Glad to hear you are off the pred. Boy what a difference a month makes !
The app sounds like an awesome thing ( leave it to you.. I believe YOU will find the cure !)

I don't know what else you can add,it seems like you have just about everything covered..but I will reread it again and let you know if I think of anything. Stay well my friend and keep on pedaling ! Hugs

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Slight edit: ( leave it to us.. I believe WE will find the cure !)

I know right, a month on 50mg pred is quite something. This time though I was aware enough to take photos as it got bigger and then smaller. So I'll put them together and post them here so that people can see that despite the full on grossness, you do come back. I've also learned some good lessons on this last flare. Some nugget of gold in everything, no matter how crappy. I'll share the last lesson learned in a new thread. You just reminded me.

Quote:

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Originally Posted by marta

Ha ha Pete, 'striking' is a good word for that. Today I call it hilarious, at the time it was more along the lines of annoying. I am almost back to normal - in the face anyways, the body is still trying to catch up.

My ultimate goal with the app is to gather data. It seems the medical profession isn't much interested in working together to find a cure, aside from a few small but significant islands of practitioners, so this could be used to both help the patients, but also help the objective of finding a cure by working together. I have used that health app on the iPhone, and I find it quite lacking. I also use another one that you can alter based on your needs - lumentrails- but the magic of the one I'm dreaming of is that it can have a place to store the unpersonalized data and then the next steps are the truly exciting ones. I get ahead of myself quickly. Ha ha.

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mmmm So I think I understand what you are looking for, marta, of course, to find the common thread :)

So maybe this app can be the tool.

There is an app Wase here for drivers, which collect info from all drivers and give you an estimate of traffic etc.
So our app should be connected between the users and a statistical data center. The data center (if the user gives permission) will be able to collect all data from the user and to make statistical analysis.

So there is a need for 2 more sections: I will call them: hypothesis and diary.

Hypothesis: In it each user will write his own hypothesis for his disease and for flares up.

Diary: special events which might be a triger. in the diary, the user can write, for example that he got vaccins, had the flu, breathed near mold, had stressful event etc. The app will sent it to the data center and will check later if this is in correlation with the user disease's activity and with other users. The diary can be used for issues that maybe we dont think about. So the users will be invited to share special events.

And your picture gives me another idea. I will write another post.

The other idea is to have some fun with the app. For example to have an album like yours, before and after pred, and some other memes.

Here are some of mine :)

Attachment 2580

Attachment 2581


Or

Attachment 2582

Another:

Attachment 2583

I have some more :)

Hey, my two cents, which may be worth less than that. Our daughter uses at least one app regarding her WG. I don't use any app for anything lol. My point is that younger generations are probably more likely to use any sort of app. We know dozens of kids 21 and under who deal with WG and who can make an incredible contribution to the body of knowledge about this disease. If there's a way to get wording to be inclusive of all ages, that would be awesome. For example, kids usually don't have work, but missing school is a big deal. And if they move away to college, they often have a need to coordinate care between a doctor local to their school and their doctor back home. Tracking mentrual cycles is another layer to this that differs from pediatric to adults. Seems like a lot of pediatric-onset WG occurs towards the beginning of puberty, which means cycles haven't started or are still irregular. When kids are first diagnosed they are often in extreme crisis and are administered Cytoxan, which disrupts cycles more. Sterility or even "normalcy" is such a big deal to adolescents, and a way to track that might be of interest.

Quote:

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Originally Posted by whatthewhat

Hey, my two cents, which may be worth less than that. Our daughter uses at least one app regarding her WG. I don't use any app for anything lol. My point is that younger generations are probably more likely to use any sort of app. We know dozens of kids 21 and under who deal with WG and who can make an incredible contribution to the body of knowledge about this disease. If there's a way to get wording to be inclusive of all ages, that would be awesome. For example, kids usually don't have work, but missing school is a big deal. And if they move away to college, they often have a need to coordinate care between a doctor local to their school and their doctor back home. Tracking mentrual cycles is another layer to this that differs from pediatric to adults. Seems like a lot of pediatric-onset WG occurs towards the beginning of puberty, which means cycles haven't started or are still irregular. When kids are first diagnosed they are often in extreme crisis and are administered Cytoxan, which disrupts cycles more. Sterility or even "normalcy" is such a big deal to adolescents, and a way to track that might be of interest.

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This is what I'm talking about. This is great feedback and ideas I haven't thought about since I'm operating from my experience. Love this idea, and absolutely agree. I'm going to start a terms of reference for what I want to see, and these suggestions will definitely be on there. Thanks a million!!!

There is an App called Lupie Diary, that someone shared today, in a Lupus group that I am in.

It has personal information, an alarm reminder for medication etc, a self management field and also a medical records area and other fields

I haven't purchased it, because I really just don't get things like that, but from what they are saying, it is good.

Maybe worth checking out and see where improvements can be made

Quote:

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Originally Posted by mishb

There is an App called Lupie Diary, that someone shared today, in a Lupus group that I am in.

It has personal information, an alarm reminder for medication etc, a self management field and also a medical records area and other fields

I haven't purchased it, because I really just don't get things like that, but from what they are saying, it is good.

Maybe worth checking out and see where improvements can be made

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Thank you Michelle.

This is the kind of thing I'm talking about. My doctor has wanted to do one for Vasculitis for a couple of years now. We were going to work on it together, along with one of her grad students, but it never happened. This is why I think we can do something great and bigger picture. No purchase necessary for the app, and have it for everyone with an autoimmune disease, and start showing the world the scope of this disease, and use the data to even further that objective and push towards obliteration of autoimmune disease.

See how I operate in delusions of grandeur? Ha ha. Shooting high. ;)

Quote:

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Originally Posted by Alysia

mmmm So I think I understand what you are looking for, marta, of course, to find the common thread :)

So maybe this app can be the tool.

There is an app Wase here for drivers, which collect info from all drivers and give you an estimate of traffic etc.
So our app should be connected between the users and a statistical data center. The data center (if the user gives permission) will be able to collect all data from the user and to make statistical analysis.

So there is a need for 2 more sections: I will call them: hypothesis and diary.

Hypothesis: In it each user will write his own hypothesis for his disease and for flares up.

Diary: special events which might be a triger. in the diary, the user can write, for example that he got vaccins, had the flu, breathed near mold, had stressful event etc. The app will sent it to the data center and will check later if this is in correlation with the user disease's activity and with other users. The diary can be used for issues that maybe we dont think about. So the users will be invited to share special events.

And your picture gives me another idea. I will write another post.

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Absolutely. I like that idea because we are most engaged and curious as to the possible trigger, so that might be a good idea. In a perfect world, where everything turns out the way it's meant to, I would love to find a rich dot-com-er with lots of money to blow, and an understanding of AI (not autoimmune but artificial intelligence) where they would be interested in finding the answer. Once we start harvesting data, it would be great to put an AI scouring program to look for patterns and come up with hypothesis. I saw this guy on Ted Talks yesterday and will send him my crazy idea. What's the worst that can happen? He laughs at me and doesn't do anything. I'm totally OK with that, my ego won't be hurt, but I'll know I tried. And now that I've typed it out here, I have to try, ha ha. Here's the talk that I saw yesterday that I will use as a spring board. (On a side note, in the last few days, I keep stumbling over things that totally jive with this idea, so the universe might be giving me some helping hints.) https://www.youtube.com/watch?v=aR5N2Jl8k14&t=304s Augmentation baby.

You mentioned a possible app for meds among other things. As for meds, have you seen this app?
https://medisafe.com/

I have started to use it. Its free and no ads or catches of any kind. It is probably most useful when you have a lot of meds to keep track of.

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Originally Posted by vdub

It is probably most useful when you have a lot of meds to keep track of.

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We don't know anyone like that, do we? Ha ha.

Thanks for the info vdub. I'll check it out. I seem to be ok at remembering when pred is involved (for obvious reasons,) but once I'm off it, I tend to have the odd day where I miss taking my meds. Too busy living I guess.

Wow here we have in a nutshell what got me hooked on this Forum 9 years ago; something exciting, positive and uplifting, in short the perfect medicine!!
Once we know we are relatively "safe" in our lifeboat, free from imminent capsize etc we have to plot a course to the shore and lasting freedom; this would appear to me to me a wonderful opportunity to grasp in our hands. I was excited before I logged on tonight as the local TV was covering the incredible build up of a drug companies coming to the city of Cambridge, where the Centre of Excellence Addenbrookes hospital is located. I am sure that it is only a matter of time before, as Marta has stated, that a breakthrough is made with regards to the large umbrella of AI diseases are concerned.
A simple to operate App but with the facility to enable a quick and reliable accumulation of information must be a tremendous boon to our cause. We are our own advocates and probably know as much as a large percentage of the medical fraternity so the information would be "solid gold"
I, along with many others, no doubt have been involved in all sorts of trials and data gathering exercises and this App would appear to take that to another level!

At first glance Marta, you and Alysia would appear to have covered most of the required fields but I know that this Forum will chip in with great ideas.
I look forward to reading more about the develoment with excitement!

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Originally Posted by Geoff

Wow here we have in a nutshell what got me hooked on this Forum 9 years ago; something exciting, positive and uplifting, in short the perfect medicine!!
Once we know we are relatively "safe" in our lifeboat, free from imminent capsize etc we have to plot a course to the shore and lasting freedom; this would appear to me to me a wonderful opportunity to grasp in our hands. I was excited before I logged on tonight as the local TV was covering the incredible build up of a drug companies coming to the city of Cambridge, where the Centre of Excellence Addenbrookes hospital is located. I am sure that it is only a matter of time before, as Marta has stated, that a breakthrough is made with regards to the large umbrella of AI diseases are concerned.
A simple to operate App but with the facility to enable a quick and reliable accumulation of information must be a tremendous boon to our cause. We are our own advocates and probably know as much as a large percentage of the medical fraternity so the information would be "solid gold"
I, along with many others, no doubt have been involved in all sorts of trials and data gathering exercises and this App would appear to take that to another level!

At first glance Marta, you and Alysia would appear to have covered most of the required fields but I know that this Forum will chip in with great ideas.
I look forward to reading more about the develoment with excitement!

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Wow, here we have in a nutshell why I love Geoff as much as I do.
Exciting, positive and uplifting and forever supportive.
This is why this forum is so great.
You can come on here with aches, pains, complaints, questions, and yes, crazy ideas, and you know you'll be supported and not judged with anything you put down on screen.
The safest place to be a weggie.

Speaking of how much I love Geoff, here are some Google Earth 360's with the famous Geoff in my neck of the woods last September.

Just past Mt. Kirkeslin campground in Jasper National Park.

Athabasca Glacier (a tongue of the Columbia Icefield - the hydrological epicentre of North America) trailhead. And another one in the same area.

Edith Cavell Lake.

This one is in the same area, but Geoff is hiding behind the one black piece that didn't want to render into the 360.

Nothing but fond memories with this guy.
Just thought you'd like to see part of his amazing Weggie Journey to North America.
It sure was cool meeting someone in person that I first met on this forum on the other side of the planet.
A person who has always been an inspiration to me with his soft spoken, positive wisdom.
And you should hear him laugh. It's the best.

:blushing:

Getting off topic bringing back such amazing memories but hey. why not!! We have a lot to deal with in our lives, one way or another and so, for me personally, it was probably the best medicine to travel and meet Marta, as well as 4 other Weggies; Lisa, VW, Anne and Jola.
I would do it all again at the drop of a hat!!
The time I spent in America and Canada was very special and I will endeavour to visit again, maybe the East/Central area, North and South!
I'm open to offers, I'm such a tart

Quote:

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Originally Posted by Geoff

:blushing:

Getting off topic bringing back such amazing memories but hey. why not!! We have a lot to deal with in our lives, one way or another and so, for me personally, it was probably the best medicine to travel and meet Marta, as well as 4 other Weggies; Lisa, VW, Anne and Jola.
I would do it all again at the drop of a hat!!
The time I spent in America and Canada was very special and I will endeavour to visit again, maybe the East/Central area, North and South!
I'm open to offers, I'm such a tart

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You're welcome in Ohio!!

Quote:

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Originally Posted by Geoff

I'm such a tart

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I love tarts.
Tart on, golden child.

Quote:

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Originally Posted by Geoff

...maybe the East/Central area, North and South!
I'm open to offers, I'm such a tart

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If you want to see Wisconsin, I'm only a mile from the Wisconsin boarder where I live in the northern part if Illinois.

Cheers MikeG and Pete!!

I'l let you into a little secret, back in the "Summer of Love" c.1967 when I was an impressionable young lad, I wanted to escape England and visit America.

Obviously my parents had other ideas and my dream was only realised last year when I completed a 4 week road trip up the west coast and then finishing up in Jasper, Canada with Brian and Marta.

Its fair to say the adventure gave me the greatest buzz as I travelled with just a small carry on suitcase, caught greyhound buses, buses and trains and had a blast meeting other Weggies whom I have come to know as friends through this Forum.

I have already bought a map of Central/Eastern USA as I have dreams of visiting again! Should it come to fruition, you will be the first to know!! Fingers crossed.

Check this one, marta
https://worldisraelnews.com/watch-ne...pp-209x139_png

Maybe you can use his ideas or even check with him about sister app for AI diseases.

Also the myRA app (rheumatoid arthritis)

What a stunning idea and akready has so much deapth, i bet you have a cape and where your pants on the outside of your clothes! :-)

Sent from my SM-G930F using Tapatalk

Quote:

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Originally Posted by BenHornsby

What a stunning idea and akready has so much deapth, i bet you have a cape and where your pants on the outside of your clothes! :-)

Sent from my SM-G930F using Tapatalk

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Other things i think about are what fluids i have had and diet, fitness or activity would influence recovery/management of it. I see a common link after reading posts with stress and thats hard to quantify as we all deal with it in different ways. Capturing all the data would be an awesome quest and so benifit much more than I can comprehend.... if I can help in any way please let me know.. my background is in IT networks and communications and have good friends that work in the industry that I can call on for advise if ever you need it.

Sent from my SM-G930F using Tapatalk

I want that app. I just started Pred yesterday again. It would be nice to track symptoms of a new drug, and good results also.

Hi again,

Just had an appoint ment with my consaltant today and a real usful tool for the app as I have a brain like a sieve would be a sound recorder so we could digest what's being said later and have a personal log of what's said for reference/research??

Could have other uses for notes to take in to appointments as there is Always things you forget in the moment being distracted with pain/problems ect

I think a panic button for help to a family member/s or designated number of the users picking that could text or two way calling on it could be useful as well, i have been involved the development in loan worker devices that have Bluetooth hart rate monitors, fall alerts with movement time out on for automated email and message alerts.

It's has so much potential to be an amazing application on the mainstream mobile operating systems, just need to make sure it has an intuitive and user friendly interface.....

Really interested and exsited in this idea and hope it takes off and would only be too happy to be involved in the development of it in any way with my IT background.

Ben x

Sent from my SM-G930F using Tapatalk

Hey Ben,

I was just looking through my subscribed threads and stumbled onto this one and I wanna thank you for reigniting this idea. I will start putting all of this down on a list and approach some tech schools to see if they want to make it into a class project.

In the meantime, there's an app I used for my pred history and other medical stuff, but you program it yourself for your own needs. You can also record voice memos, and even the conversation with the doctors. I did that a couple of times when I had nobody come with me at appointments. I just ask them if I can record so that I don't miss or forget anything due to the sheer volume of information at each appointment. They had no problem at all with it, and that way you can go home and digest everything said. I digress. As always. :)

Lumen Trails is the app I used. I have a great visual graph of the wean.

Thanks again for reigniting the spark.

Peace.
Marta

There are some studies on going on GPA at places like Mayo. They have some symptoms checklists and self rating scales to complete at each visit plus they put in lot of data from their lab work. Maybe the app could use some of the same data. If the numbers of users is large enough it should be easier then to find correlations that might be significant. Correlation does not equal cause but might still generate useful info to help in treatment decisions or designing better experiments to check out hypotheses about GPA and how to treat it. At our present stage of ignorance about GPA and its treatment, we only have a few clues about possible causes and lot of uncertainty as to what individual factors are most likely to be relevant for successful treatment. Such an app might help people learn to recognize their own patterns and warning signs.

Quote:

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Originally Posted by drz

There are some studies on going on GPA at places like Mayo. They have some symptoms checklists and self rating scales to complete at each visit plus they put in lot of data from their lab work. Maybe the app could use some of the same data. If the numbers of users is large enough it should be easier then to find correlations that might be significant. Correlation does not equal cause but might still generate useful info to help in treatment decisions or designing better experiments to check out hypotheses about GPA and how to treat it. At our present stage of ignorance about GPA and its treatment, we only have a few clues about possible causes and lot of uncertainty as to what individual factors are most likely to be relevant for successful treatment. Such an app might help people learn to recognize their own patterns and warning signs.

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Thanks drz,

I think that's valuable info. I have to force myself to put my interest outside of WG. Include it but it's a small part of a much bigger puzzle that not a lot of people are trying to solve.

I see the answer to WG lying inside the answer to autoimmune disease and the only way to get to it is by doing the puzzle as a whole one step at a time. The way that I see the big picture is kind of like a Sudoku puzzle. Where autoimmune disease is the big puzzle, and each individual autoimmune disease is one of the squares within the puzzle. You get answers within the small squares only in relation to every other square in the whole puzzle. That's why I think we have to look at the puzzle of autoimmune disease, with each manifestation giving us answers to other manifestations and you work your way around the puzzle from one small square to another, jumping around based on the last discovery until you finish the puzzle. Once the puzzle is complete, poof, no more autoimmune disease (very wishful thinking) and as a byproduct, autoimmune disease becomes one of the small squares of an even bigger picture - chronic diseases that are directly related to a malfunctioning immune system (cancer, heart and stroke, mental health)... so my vision is massive, delusional, but I have faith that it will come to fruition. The only question is will I be alive to see it happen.

How's that for nauseating optimism?
I know, right.
;)

Hi marta,

I hope that you & yours are doing ok.

The health services in Israel publish the following app

https://www.khealth.ai

I didnt downloaded it. Not sure I like the idea of virtual dr. Asking me questions... but maybe parts of it can be useful for us....