Originally Posted by
gilders
"Im thankful for the clinical trials that ppl are a part of, otherwise they would always be following protocol"
It's nice to hear people being appreciative of clinical trial patients. I'm on the RITAZAREM trial.
As for whether you should be on drug free remission or not is a tough choice. I have had periods of drug free remission and have quite aggressive Wegener's (when active). I'm currently awaiting kidney transplant and really could not say if I'd never gone drug free whether my kidneys would have failed so badly or not.
I can't regret my drug free choices as the drugs have bad side effects and in my case, they have become less capable of "fighting" flares/relapses. So I'm happy to hold back on maintenance, so that the drugs are more potent during a flare.