My third anniversary of my Weg diagnosis is today.

Last year close to my second anniversary of diagnosis I posted about my diagnostic experience and improvement. Now one year year later things are much the same. Right now I am feeling good and back in a drug induced remission again. I had two infections this winter which cause the Wegs to flare two times during the holidays from before Thanksgiving through a couple weeks after New Years but since then have felt pretty good again.

I see a lot of doctors frequently at seven different locations to monitor my health and they say I am doing better than last year. I feel very fortunate and am very happy about the degree of recovery I had from my worst times, but i am still hoping for further improvement in the next year.

Some times when I am feeling pretty good I get delusions of adequacy and try to do some task that used to be very easy for me and then end up having to spend a day in bed resting up again. I am getting much better though at rationing my "spoons" and taking naps PRN before I over do things and crash. I am now much better at accepting my new "normal" and find it mostly enjoyable despite the various limitations from the Weg damage and need to have a medical appointment or two almost every week. This usually means a day trip out of town (over 9000 miles last year) But I know that unless I am diligent in trying to maintain what health I have left, I will have little joy in Muddville.

Have a good day unless you have made other plans! :biggrin1:

Hi drz
strange to say "happy anniversary", but this is it :)
it seems that things are getting better from year to year :thumbup:
it is good and good to hear about it.
it is a kind of "relationship" with the weg.
I call it "my wegener", sometimes with anger, sometimes with kind of "intimacy", like we are 2, me and my weg.

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Originally Posted by drz

I get delusions of adequacy...Have a good day unless you have made other plans! :biggrin1:

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First of all, congrats drz...another year down! Yea! And feeling better too, well, same is better!! LOL! Annnnd, you ARE sooooooo funny! Methinks your expression of self is improving vastly...those lines are soooooo mean, ironic, and TRUE!!! Love it! Made me laugh...I like laughing! Good therapy, y'know! The best as always to you!

Hi drz,

Happy anniversary, I think. Given some of the options, it probably beats not having an anniversary. ;-)

Delusions of adequacy -- I love it. Describes my approach to strenuous work also. At least I'm retired, so I'm having a lesser sense of urgency about yard work. If it doesn't get done today, it'll still be there tomorrow. Hey, the mañana mentality is useful after all!!!

Congrats, drz, on being able to say you are doing better on your third anniversary than you were on your second. AND, we have pretty much a shared anniversary, as my dx was right around this time 2 years ago... could even be the same date, but I'd have to find an old calendar to know for sure. I, too, can say I'm doing better than a year ago and also have experienced the "delusions of adequacy", along with some actual adequacy!

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Originally Posted by annekat

Congrats, drz, on being able to say you are doing better on your third anniversary than you were on your second. AND, we have pretty much a shared anniversary, as my dx was right around this time 2 years ago... could even be the same date, but I'd have to find an old calendar to know for sure. I, too, can say I'm doing better than a year ago and also have experienced the "delusions of adequacy", along with some actual adequacy!

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Today is the same date, two years ago, that I started my journey with WG medication.
I was, however, diagnosed in Aug 2010 but had to wait on specialist appointments and biopsy before any action was taken.........we don't do anything in a hurry over here

Well done drz and I'm glad things are getting better each year.

.............How about you make your next anniversary, a med free remission

"happy" anniversary DRZ :) I hope the coming year is a healthy one for you :)

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Originally Posted by Pete

Delusions of adequacy -- I love it.

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Me too. Brilliant! :biggrin1:

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... Hey, the mañana mentality is useful after all!!!

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Also very true, and funny! :thumbsup:


Congratulations to you, drz!
And many happy returns! :hug3:

Yippee! Here's to many more years of better health!

Great news, I wishing you all the best every day, all day long! I also am coming up on 3yrs of my major flare and lung surgery. I know what a scary eposode you had when you first got sick and you have came a long way baby! A big congrats is in order!:hug2: