Time flys when you are having fun !!
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Time flys when you are having fun !!
Ain't it the truth!!!
Well, here I am; diagnosis day plus six years. It's been quite the journey. Fortunately, it's been a blessed journey, even when I had a major flare five years ago. I've made friends on this forum who I treasure and would like to meet someday. I've gotten advice and support from people who are on the same journey. To all of you, I wish good health and the blessings of effective treatments, wise counsel, and peace of mind.
Pete,
Congratulations on your six year Dx Birthday! It is so good to see how well you are doing. Thanks for sharing your journey with us. Keep up the good health!
Nine years in now. I was released from OSU Medical Center nine years ago today. The past year saw my second minor (and third overall) flare. The disease remains well-controlled with an annual dose of rtx. Other than a four-week pred blast to treat last summer’s flare, I’ve been pred free since June 2018.
Here’s to significant advances in treatment of the disease in the coming year.
Thanks for the annual update, Pete. You were dx'd and began treatment a couple of months before I was in 2011. I looked back over the thread from the beginning, and found good posts from people who have either passed away or haven't posted much in years. Some humorous ones, too. Might be a good way for new members to get some background and get acquainted with some of those old members. Sorry for last summer's flare, but glad you are pred free and generally keeping things under control. Amen to new advances in treatment! Next year will be our 10 year anniversary! Cheers!
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Happy survivor'versary Pete.
Such a lot of time has passed, and you have and your medical team, have done well :thumbup:
Who would have thought it, when we all read those google reports, way back then
Well, here I am at 10 years post dx. Thankfully, there’s very little to report on the GPA front. Still off pred. Taking bactrim 3x weekly. Getting ready for either a 500 mg rtx in March or my COVID shots within a few weeks (B-cell level permitting).
For those who are newer to the forum, this thread provides most of my early case history. From there, I’ve recovered to lead the normal life of a 74 year-old.
Good to hear all is well, Pete! We are coming up on my 10 year anniversary in a couple of months!