Oh, I like this quote :)
What kind of sympathy and awareness is it that you guys are hoping for? I'm just wondering as Weg's can affect people in so many ways that its hard for someone who has it to know what all it can do, so what would you want the the people who don't know anyone with Weg's to know about the disease?
My mom always sound so worried when I talk about the disease, that I kind of just want to tell the good news. I do wish they'd help with the kids more, as its been a really rough year and a half for my family.