marta
07-28-2010, 03:50 PM
This is a really Off Topic Post...
You know how the odd book or song or comment comes just at the right time? Well I have a funny story about a song.
A Preamble...
Before I got diagnosed I was lucky enough to get quite a bit of downhill and cross country skiing in. I love to do it with music in my ears, and one night - after I got my ear problem, but much before the final climax of the hospital visit when it was all made 'clear' for me, I was flipping through the channels and stumbled onto a music video which was quite disturbing visually, but had a great sound and an awesome beat. That night I downloaded it and it became one of my new faves when I wanted to get agro and either beat the slopes up on my downhill skis, or really make myself hurt on my cross country skis. For almost two months it was the song I would turn to when I wanted to 'turn things up a notch'.
A Second Preamble...
After things started to go awry, I went to an amazing reflexologist (she's actually a 'wro shr' practitioner who brought my mother back from the brink, a 70+ year old lady from China who is absolutely unreal). She worked on me a few times and likened what was going on in my body to a strong wind. She said that it's travelling through my body and affecting different organs on different days, she likened it to a 'hurricane' within my system, and said it was quite difficult to treat as it didn't stay in one place too long. Incidentally she totally nailed which organs were affected before I had the diagnosis from the Western Docs.
That's it for the preambles, on with the story...
So things went on, my exciting adventure went through it's course, I got diagnosed with WG, and became a member of a very exclusive club. After all the excitement and chaos subsided I finally went back to my iPod and listened to my playlist (Marta's Happy Place is what I call it) that I listened to while playing in the great outdoors before I went horizontal for a bit.
I listened to the words for the very first time to the song that I had downloaded and listened to a hundred times in the two months before my hospital visit. I was awestruck! Sitting in my parents kitchen with my mouth agape and tears running down my face. The words all of the sudden seemed like they were written for me.. except for the odd line, it was nutty how THERE it was.
I AM the Beast and Wegener's is the Hurricane.
"Don't mess with a Beast Mr. Hurricane!"
Here's a link to the video, and it is somewhat bizzare visually, but listen to the words...
http://www.youtube.com/watch?v=0eHaps3Ykqk
Now everytime I feel like I need to 'give'er' or some extra strength, I listen to this and it makes me grit my teeth, flex my muscles and go forward. I went for a 28km road ride today on my bike and listened to it a few times. It felt really good. Really really good. I might pay for it tomorrow, but today I feel good.
You know how the odd book or song or comment comes just at the right time? Well I have a funny story about a song.
A Preamble...
Before I got diagnosed I was lucky enough to get quite a bit of downhill and cross country skiing in. I love to do it with music in my ears, and one night - after I got my ear problem, but much before the final climax of the hospital visit when it was all made 'clear' for me, I was flipping through the channels and stumbled onto a music video which was quite disturbing visually, but had a great sound and an awesome beat. That night I downloaded it and it became one of my new faves when I wanted to get agro and either beat the slopes up on my downhill skis, or really make myself hurt on my cross country skis. For almost two months it was the song I would turn to when I wanted to 'turn things up a notch'.
A Second Preamble...
After things started to go awry, I went to an amazing reflexologist (she's actually a 'wro shr' practitioner who brought my mother back from the brink, a 70+ year old lady from China who is absolutely unreal). She worked on me a few times and likened what was going on in my body to a strong wind. She said that it's travelling through my body and affecting different organs on different days, she likened it to a 'hurricane' within my system, and said it was quite difficult to treat as it didn't stay in one place too long. Incidentally she totally nailed which organs were affected before I had the diagnosis from the Western Docs.
That's it for the preambles, on with the story...
So things went on, my exciting adventure went through it's course, I got diagnosed with WG, and became a member of a very exclusive club. After all the excitement and chaos subsided I finally went back to my iPod and listened to my playlist (Marta's Happy Place is what I call it) that I listened to while playing in the great outdoors before I went horizontal for a bit.
I listened to the words for the very first time to the song that I had downloaded and listened to a hundred times in the two months before my hospital visit. I was awestruck! Sitting in my parents kitchen with my mouth agape and tears running down my face. The words all of the sudden seemed like they were written for me.. except for the odd line, it was nutty how THERE it was.
I AM the Beast and Wegener's is the Hurricane.
"Don't mess with a Beast Mr. Hurricane!"
Here's a link to the video, and it is somewhat bizzare visually, but listen to the words...
http://www.youtube.com/watch?v=0eHaps3Ykqk
Now everytime I feel like I need to 'give'er' or some extra strength, I listen to this and it makes me grit my teeth, flex my muscles and go forward. I went for a 28km road ride today on my bike and listened to it a few times. It felt really good. Really really good. I might pay for it tomorrow, but today I feel good.