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View Full Version : How many here are able to attend a face to face support group on a regular basis?



drz
07-19-2010, 01:21 PM
Just wondering how many people actually have access to such a group?

What is the experience like?

pberggren1
07-19-2010, 02:43 PM
Probably in more highly densely populated areas there would be support groups. I have met 2 other Weggies myself. I could pobably meet more if I had more money to travel and felt better and had more time.

Jack
07-19-2010, 06:51 PM
There is a Vasculitis support group run by my hospital, but I've never attended because I've never felt the need. Am I antisocial? I'm not sure that I want to chat about illness for an hour, I'd prefer to talk about cars. ;)

I like the forum because I can pick and choose what subjects I feel I can contribute to and if I'm having a grumpy moment I needn't reply to anyone.

andrew
07-19-2010, 07:08 PM
Never met a nother Weggie in person. Spoke to a couple on the phone. As far as I know (and admittedly I've never checked) there's no support group in my area.

JanW
07-19-2010, 11:34 PM
First time I will meet other Weggies will be in Long Beach, and I live right outside of NYC. A support group used to meet in my ENT's office, but I think that the woman organizing it went into remission, had kids and could no longer do it. However, I much prefer to talk to people on line and suspect that it would always be that way, no matter what kind of issue I was dealing with. I prefer this mode of communication.

Jack
07-19-2010, 11:40 PM
I seem to remember reading a Sci-Fi novel where all communication was via video link. The main character caused quite a stir when he went visiting people in person.

Sangye
07-20-2010, 02:09 AM
I think there's a group out here somewhere, but I feel the same way. I'm certainly limited by how I feel and other transportation issues. But it would be impossible to meet occasionally and get the same type of interaction as we have here. Good mood, bad mood, hope, despair-- it all changes so quickly. I love the "dinner table conversation" feel of this group.

Hammy8241
07-20-2010, 02:28 AM
I seem to remember reading a Sci-Fi novel where all communication was via video link. The main character caused quite a stir when he went visiting people in person.

I suspect that if people wanted video links then, everyone could be doing it free on Skype now but , IMO, you can be more honest from a distance in your comments and also whilst we are united by WG closer relationships may not work.............although it would be interesting to know more. Wg also makes me NFI (work it out!) in one on ones as it just seems to much hard work with a fuzzy head.

But back to the original question know of no support groups at all. Know of one other WG sufferer in remission in the area but not contacted her yet. (works with my daughter).

Hammy8241
07-20-2010, 02:34 AM
I love the "dinner table conversation" feel of this group.

Agree Sangye.

I can see it going downhill as soon as I ask you to pass the salt or where are the muffins:)

Palmyra
07-20-2010, 02:40 AM
I want a muffin, too. I live in a large metro community in the US (Texas...why I have no clue! Please figure out a way to get me out of here!), and just went to a VF local meeting this past Saturday. Guest speaker was a local young rheumy that did 2 years under Doc's Stone and Seo at John's Hopkins. It was nice to get together face-to-face with others dealing with similar issues. Really not so different from these forums.

It was also good to hear a young doc speak, that once saw so very many Weggies at JH, and now that he is in private practice here, he sees very few. He did offer insights as to how that affects most local docs and how they practice.

Sangye
07-20-2010, 08:02 AM
Someone, quick-- get Palmyra a muffin! :D

Too bad that young doc wasn't converted to a Wegs specialist-- we sure need more. Well, at least he's out there with all that knowledge. That helps everyone.

Sangye
07-20-2010, 08:04 AM
Agree Sangye.

I can see it going downhill as soon as I ask you to pass the salt or where are the muffins:)
LOL-- We'd all be slouched around the table, but I can just imagine how animated we'd all get if someone said, "Muffin, anyone?" All our heads would pop up! :D

elephant
07-20-2010, 09:03 AM
I am getting Muffins tomorrow at Whole Foods. So excited...but havn't been able to taste that great.

pberggren1
07-20-2010, 09:24 AM
I'm like you Jack. I would rather talk about cars. British cars have always facinated me. If I ever make it to the UK I want to visit with you.

My favorite British cars are Aston Martins and Jaguars. Though I like Lotus as well and Bently of course.

I like the German marques as well. Especially BMW.

Sangye
07-20-2010, 09:57 AM
I love Lotus. My dog named Lotus, that is. :D

(Her real name is Lotus Blossoms. Also Monkey. And Miss Mouse. And Molly Mischief. Oh, and Sister Friend) :D

Jack
07-20-2010, 07:24 PM
My favorite British cars are Aston Martins and Jaguars.

http://static.blogo.it/autoblog/aston-martin-dbs-red/AstonMartinDBS_red_0.jpg

I worked at the same site where they are made and shared a lot of test facilities.
They are quite common in this area - some people must have a lot of money!

Palmyra
07-21-2010, 01:19 AM
I will take the red one Jack, as long as my driver is Daniel Craig..;)

pberggren1
07-21-2010, 08:01 AM
Won't Jack or I suffice as drivers Palmyra?

The DBS is one of my favorite all time Astons. Have you heard anything about the new One77 coming out Jack? I hear it is supposed to compete directly with the Ferarri Enzo.

Jack
07-21-2010, 07:56 PM
The One77 is just a rich man's collection car really - hand made in limited numbers from carbon and aluminium with a 7 litre V12, it seems to have sacrificed the usual drop dead gorgeous looks for a more aggressive stance.

http://www.niot.net/blog-images/24_May/geneva-2009-aston-martin-one-77-almost-fully-revealed.jpg

drz
07-22-2010, 08:06 AM
The One77 is just a rich man's collection car really - hand made in limited numbers from carbon and aluminium with a 7 litre V12, it seems to have sacrificed the usual drop dead gorgeous looks for a more aggressive stance.

http://www.niot.net/blog-images/24_May/geneva-2009-aston-martin-one-77-almost-fully-revealed.jpg

I can't imagine what it would cost to insure such a car but if I could afford the car I wouldn't have to worry about such things as insurance, would i?

pberggren1
07-22-2010, 09:24 AM
I believe they are only going to build 177 of these and the asking price is north of 1 million dollars US.

marta
07-22-2010, 10:22 AM
Agree Sangye.

I can see it going downhill as soon as I ask you to pass the salt or where are the muffins:)

That just made me snort up my water. ha ha ha...

Lightwarrior
07-26-2010, 05:45 AM
Yeah, Doug or the CEO of your Insurance Company:rolleyes:

Doug
07-26-2010, 05:53 AM
Yeah, Doug or the CEO of your Insurance Company:rolleyes:

For those who didn't see it, I wrote, then the deleted, this comment: "So that's what the CEO of my bank is driving this year." I thought it a bit snippish and uninformed. He's actually buying that 1.5 million dollar Studmuffin Exploiter RS parked next to it. Ha! I guess I can't calm this class anger any longer.

Jack
07-26-2010, 05:58 AM
Don't knock it. That sort of thing is paying my pension! ;)

Doug
07-26-2010, 06:04 AM
Jack ~ My pension, too! God bless them! Those CEOs need to have somewhere to park their euros, pounds, and bucks. Machinery like this keeps lots of craftsmen busy doing something besides making little trinkets for the touristas passing them by on the street corners of major cities.

pberggren1
07-26-2010, 06:39 AM
How true Doug and Jack. It all makes the world go round.

germaine
01-20-2012, 04:08 PM
It is wonderful to have real people to talk to and share with. The internet is good, but really seeing people and sharing snacks and stories is so muc better. The difficulty it getting the message out to others. I took advantage of whatever free advertising there was and actually paid for a little. I live in a town of 80,000 and have gotten some work to a neighbouring town so some people come from there as well. I shared the work with a fellow weger person. I don't think either of us could have don't it alone. When I don't feel good she seems to be Ok and vise versa. Perhaps you have a healthy person to help. Her husband also helps some.