Brooke
07-10-2010, 08:26 AM
My doctor at Mayo clinic called me back today. I told her what my pulmonologist here in my home town had recommended as far as my pred taper. My doctor here wants me to do 15mg one day and 10mg the next and alternate those doses for one month. Then go to 10mg for a month and then 5mg for a month. I wanted to let my Mayo doc know that this was going to be the plan and so I called her to let her know. I told her I didn't want to go back up to 15mg if I didn't have to.
I told Dr. Karina Keogh (mayo doc) that 5mg wasn't working because I was coughing so much more especially at night. She said that prednisone will help with post nasal drip and maybe that is why I am coughing more since I am tapering. She told me to elevate my bed, start prilosec 20mg, start using my symbicort inhaler and
do 10mg pred for two weeks then 7 1/2mg for two weeks then 5mg for two weeks and then 2 1/2mg for two weeks. I need to let her know how I am doing after the two weeks at 10mg.
She also said that I do not need an echocardiogram every year, she said my one last year was really good and that it is very rare for Wegener's to affect the heart. She said unless I have new symptoms such as chest pain, she wouldn't not do another one right now.
I see her in follow up on Sept 15th. I will do all blood work for Wegener's, urine test, breathing tests, ENT visit, and CT scans.
I hope she is right and it is just post nasal drip and acid reflux that I have.
I told Dr. Karina Keogh (mayo doc) that 5mg wasn't working because I was coughing so much more especially at night. She said that prednisone will help with post nasal drip and maybe that is why I am coughing more since I am tapering. She told me to elevate my bed, start prilosec 20mg, start using my symbicort inhaler and
do 10mg pred for two weeks then 7 1/2mg for two weeks then 5mg for two weeks and then 2 1/2mg for two weeks. I need to let her know how I am doing after the two weeks at 10mg.
She also said that I do not need an echocardiogram every year, she said my one last year was really good and that it is very rare for Wegener's to affect the heart. She said unless I have new symptoms such as chest pain, she wouldn't not do another one right now.
I see her in follow up on Sept 15th. I will do all blood work for Wegener's, urine test, breathing tests, ENT visit, and CT scans.
I hope she is right and it is just post nasal drip and acid reflux that I have.