Anyone with WG of the eyes...

[Aunnie]

I need to know WG eye symptoms,please...

I've had "pink eye" for 13 days now,with eye drop treatent ,the symptoms are less,but my eyes still tear,crust and are red some of th time.I've also had some eye pain...

Thanks for your in put.

Aunnie

[Jack]

I used to get bright red eyes like something from a horror film, but they were not painful and had no discharge. They went away once my Wegs was under control although I still get the occasional burst vein in an eye.

[Sangye]

Aunnie, you need to see an opthalmologist asap. Wegs can cause a number of problems with the eyes and some can cause vision loss. Call your rheumy and see if s/he knows an opthalmologist who knows about Wegs. Even if you can't find one experienced with Wegs, go see someone.

[JanW]

And if you can't get one experienced in WG at least go see someone who is used to seeing autoimmune disorder patients. Then at least they know about potential eye effects caused by pred and other immunosuppressants.

[Col 23]

Hi Aunnie
when I had eye probs initially I think they called it sceritis and I was very close to going blind. I was intially given steriod drops and also had dry eye which I had drops for as well. I had to put the steriod drops in 4 times a day for months. The Eye Specialist was the original person that thought i had WGs and sent me the ER. He has advised that the eyes need to be treated systemically with meds, which means the Methotrexate and the Pred. Gradually after 6 months my eyes have improved and I am now only using eye drops to treat the dry eye. Hope this helps.
Col 23

[Theresa]

Aunnie,
Episcleritis and a cotton wool spot were the very first symptoms my son had. His opthamologists kept insisting that an autoimmune disorder must be causing it but everything they tested for came back negative. No one thought of WG. Anyway, episcleritis progressed to scleritis before he got the WG diagnoses. Steriod drops and oral pred got rid of it. We ended up at a Cornea specialist who partnered with the Rheumy.

[Aunnie]

Thanks all !!!!!!!!!

I will email my WG Dr. now and call my Opthamalogist tomorrow


Theresa..what were your sons symptoms??

Col23 ...What were your symptoms???

Hugs to all, Aunnie

[Col 23]

Hi Aunnie
I felt like someone had punched me in the eye. Very painful couldnt see well and headaches.
When I have a return it feels as though someone has punched me in the eye but not hard. (mild pain).
I was also having my eyes tested every week for months after diagnoses, I was fortunate that I was not left with any damage except the dry eye.
Hope this helps
cheers Col 23

[Theresa]

Aunnie,
Justin had red eyes and eye pain. Also headaches.

Theresa

[gwenllian111]

I had an optic neuritis, but with no pain or other symptoms to speak of - except that my field of vision was poor. For me, it felt irritating, like there was a hair stuck in my eye or something! Sorry that's not very useful. Hope Justing gets some answers soon

[jola57]

I had episcleritis at the beginning twice. Both times I had eye pain, as if someone was either pushing or pulling on my eye. Both times it was contained just to the outside of the eye, and cortisone drops 4 times a day for 4 weeks cleared it up. I still get the eye pain and red eye, but it goes away by itself. Headaches come and go but not necessarily in tandem with the eye.