Lightwarrior
06-20-2010, 01:03 PM
I have spent the last week in hospitals with my oldest grandson Dominic, who has lived with me since his birth 18 years ago just had a clot that extended from his calf to his femoral area.gold us
The caper started about two weeks ago when he complained of calf pain after playing basketball, i took him to emergency room and they told us he had a partial rupture of his achilles tendon and should stay off his foot, gave him a pair of crutches..
Last Sunday he his complaing that his calf really hurts much worse and that his leg goes numb as soon as he sits on the toilet. (that got my attention). They did an ultrasound and found a huge clot, they tried to lyse the clot in interventional radiology and were unsuccesful so we went by ambulance to Banner Good Samaritan hospital in Phoenix. The nurses there were wonderful and let me stay in his room on a cot. I lived out of one little duffel bag all week.
They were able to lyse the clot and put in a filter, we got home late last night and I'm giving him high dose lovenox injections, coumadin and getting him into the local coumadin clinic on Monday. While we were there they did all sorts of genetic testing, the results aren't back yet since he is young to have such an extensive clot and my grand-daughter Desiree had a clot last year after a broken ankle (much smaller), She was 15 at the time, his Godmother who is my childrens fathers sister has had a problem with clots since she was 22.
I don't think he has Wegeners but I am curious about another auto-immune type of disease involvment. I'm going to ask for an MRI on Monday also of his lower leg since the interventional radilogist in Phoenix told me that his lower leg was really "tight" inside. Interestingly enough, he never had diminished pulses, redness, heat or swelling in his leg.
He was pretty scared and so was I especially when the ICU docs here told me to get him to a tertiary care center (Good Sams is) and the hospitalist who admitted him thought sending him home on coumadin, no filter and no further intevention would probably be okay. I had two intensivists pushing hard, myself and the case managers to make the transfer happen. I fear for John Q public
The bright side beyond him living through it is that his more spiritual side re-appeared and he now wants to go into the medical field, he has been sort of lost not knowing which direction to go. I got a whole week of one on one time time with him. Whenever he was small and things were challenging I always told him that we were having a great adventure to make the challenge seem like fun. So I told him we were naming this adventure The Great Clotting Caper.
I've been offline and out of touch for the last week so I have some catching up to do.
The caper started about two weeks ago when he complained of calf pain after playing basketball, i took him to emergency room and they told us he had a partial rupture of his achilles tendon and should stay off his foot, gave him a pair of crutches..
Last Sunday he his complaing that his calf really hurts much worse and that his leg goes numb as soon as he sits on the toilet. (that got my attention). They did an ultrasound and found a huge clot, they tried to lyse the clot in interventional radiology and were unsuccesful so we went by ambulance to Banner Good Samaritan hospital in Phoenix. The nurses there were wonderful and let me stay in his room on a cot. I lived out of one little duffel bag all week.
They were able to lyse the clot and put in a filter, we got home late last night and I'm giving him high dose lovenox injections, coumadin and getting him into the local coumadin clinic on Monday. While we were there they did all sorts of genetic testing, the results aren't back yet since he is young to have such an extensive clot and my grand-daughter Desiree had a clot last year after a broken ankle (much smaller), She was 15 at the time, his Godmother who is my childrens fathers sister has had a problem with clots since she was 22.
I don't think he has Wegeners but I am curious about another auto-immune type of disease involvment. I'm going to ask for an MRI on Monday also of his lower leg since the interventional radilogist in Phoenix told me that his lower leg was really "tight" inside. Interestingly enough, he never had diminished pulses, redness, heat or swelling in his leg.
He was pretty scared and so was I especially when the ICU docs here told me to get him to a tertiary care center (Good Sams is) and the hospitalist who admitted him thought sending him home on coumadin, no filter and no further intevention would probably be okay. I had two intensivists pushing hard, myself and the case managers to make the transfer happen. I fear for John Q public
The bright side beyond him living through it is that his more spiritual side re-appeared and he now wants to go into the medical field, he has been sort of lost not knowing which direction to go. I got a whole week of one on one time time with him. Whenever he was small and things were challenging I always told him that we were having a great adventure to make the challenge seem like fun. So I told him we were naming this adventure The Great Clotting Caper.
I've been offline and out of touch for the last week so I have some catching up to do.