Palmyra
06-18-2010, 12:04 PM
Hello there,
Still somewhat new to the group, so I am feeling my way around the site and hope this is the appropriate place to post.
Without really fabulous suggestions for an ENT in the Austin, TX area, my daughter (24, diagnosed in 2006 @ Mayo, Rochester, initial involvement pulmonary,) is scheduled for tonsillectomy this coming Tuesday. Crossing our fingers on our choice of surgeons.
She is still B cell depleted from a Rituxin infusion Dec'09, and is still recovering from a sinus bilateral 'middle meatal antrostomies' due to an aspergilloma 'fungal ball' infecton of the maxillary sinus. Fortunately the boney capsule of the sinus was intact. Unfortunately she also has a chronic, likely bacterial infection of both tonsils, and a chronically inflamed cervical lymph node, so removal was recommended by fabulous Mayo ENT's. We just can't stay in Rochester long enough for the procedure to be done there.....(big heavy sigh...)
Any group experience with the fear of leaving a safe place and having organs removed elsewhere? Especially if it involves tonsils?
Big group hugs,
Jane in Texas, mom to Alison
Still somewhat new to the group, so I am feeling my way around the site and hope this is the appropriate place to post.
Without really fabulous suggestions for an ENT in the Austin, TX area, my daughter (24, diagnosed in 2006 @ Mayo, Rochester, initial involvement pulmonary,) is scheduled for tonsillectomy this coming Tuesday. Crossing our fingers on our choice of surgeons.
She is still B cell depleted from a Rituxin infusion Dec'09, and is still recovering from a sinus bilateral 'middle meatal antrostomies' due to an aspergilloma 'fungal ball' infecton of the maxillary sinus. Fortunately the boney capsule of the sinus was intact. Unfortunately she also has a chronic, likely bacterial infection of both tonsils, and a chronically inflamed cervical lymph node, so removal was recommended by fabulous Mayo ENT's. We just can't stay in Rochester long enough for the procedure to be done there.....(big heavy sigh...)
Any group experience with the fear of leaving a safe place and having organs removed elsewhere? Especially if it involves tonsils?
Big group hugs,
Jane in Texas, mom to Alison