Carol
09-28-2008, 08:41 PM
I was diagnosed about 3 months ago now and after being stable for the last month we dropped my daily Prednisolone from 25mg daily to 20mg. I began after a few days to feel unwell again and was "on the couch" once again for a number of hours each day. My coordination once again started to deteriorate.Then over night I developed a headache with a pain in my eye. On the 3rd day my vision began to go in that one eye. I saw my doc and she said go to an Optometrist. My Opt after a very thorough examination said get yourself to the Melbourne Eye hospital now. That was 4 hours drive away and as they were expecting me they fast tracked me through Emergency. After many tests, MRI to make sure I didn't have a tumour, ultra sounds etc they found I had a problem with my optic nerve with general swelling. It seems that it's very rare and that whatever it is would need to be treated with IV Prednisolone for 3 sessions. It was interesting that one of the tests was for colour blindness and this had deteriorated. The level of care was absolutely amazing so I recommend that if ever your eyes are playing up go staight to a very specialised hospital. The Docs there all seemed to know about Wegeners which was amazing. The Doc who looked after me co-ordinated everything so amazingly with other hospitals and my rheumatologist. Well done Melbourne Eye Hospital.