CurlyBoy
05-21-2010, 05:26 AM
Hi - For the purpose of this forum, I'll call myself a Weggie. But in real life, I'm just Dwight, married 30 years, father of two adopted sons, and grandfather of six. I'm a foodie and an enophile (wine lover). I've survived this disease for over 34 years because I embrace life. My most healing times have been when I’ve taken control of my treatment and fired doctors who had insensitive and arrogant attitudes. Now I expect a partnership.
My heart especially goes out to newly diagnosed members. This forum has alot of support and information for all of us.
I started to write my extensive medical history, then decided to keep it simple Here are the facts:
1975-1978 Sick with sinus symptoms and nose structure change
Nov, 1978 Double Caldwell-luc biopsy sent to Armed Forces Pathology Institute
Jan, 1979 Diagnosis of Wegener’s Granulomatosis
1979-86 Cytoxan and Prednisone
1993 Reconstruction of nose and tear ducts
1994 Bladder cancer surgery (from extensive Cytoxan treatment)
2001 Sinus surgery for biopsy and staph
2002 Kidney failure, hospitalization, Cytoxan and later Methotrexate
2004 More Cytoxan
2004 Heart attach and three stints
2004 Hospitalized two more times for pericarditis and chest pain
Apr 2006 Hospitalized for hypertension
May 2006 Stroke – partial left eye blindness and right arm numbness
Nov 2006 Stroke – lost 90% vision in left eye
2008 Second heart attack and more stints
2008 Second bladder cancer surgery
2008 Severe pain over right eye, temporary right eye blindness controlled by Prednisone
2008 Skin cancer surgery
2009 Tubes in both ears to control fluid
2009-2010 Retuxan every six months
My heart especially goes out to newly diagnosed members. This forum has alot of support and information for all of us.
I started to write my extensive medical history, then decided to keep it simple Here are the facts:
1975-1978 Sick with sinus symptoms and nose structure change
Nov, 1978 Double Caldwell-luc biopsy sent to Armed Forces Pathology Institute
Jan, 1979 Diagnosis of Wegener’s Granulomatosis
1979-86 Cytoxan and Prednisone
1993 Reconstruction of nose and tear ducts
1994 Bladder cancer surgery (from extensive Cytoxan treatment)
2001 Sinus surgery for biopsy and staph
2002 Kidney failure, hospitalization, Cytoxan and later Methotrexate
2004 More Cytoxan
2004 Heart attach and three stints
2004 Hospitalized two more times for pericarditis and chest pain
Apr 2006 Hospitalized for hypertension
May 2006 Stroke – partial left eye blindness and right arm numbness
Nov 2006 Stroke – lost 90% vision in left eye
2008 Second heart attack and more stints
2008 Second bladder cancer surgery
2008 Severe pain over right eye, temporary right eye blindness controlled by Prednisone
2008 Skin cancer surgery
2009 Tubes in both ears to control fluid
2009-2010 Retuxan every six months