BrianC
04-29-2010, 09:21 PM
Hello Everyone
After reading some of your experiences I feel a bit of a fraud. I was diagnosed 6 years ago now with WG, this took some time. For me I started off not being able to breath through my nose, had blood tests etc nothing to report. Around the same time I started with an annoying cough, the nose got worse and I went to see ENT. He reamed me out which improved things and seemed to get rid of the cough until a year or so later it came back with a vengeance. Did the rounds with the GP, who is excellent and I cannot fault him at all, chest xray showed something in there as did CT scan. Usual asthma meds didnt help so ended up having lung biopsy, at this point I couldnt work because of the cough, lung promptly collapsed 3 days after biopsy and results were WG.
Loads of steriods and azathioprine seemed to have it in check, in fact for the last year I have been on 7.5mg pred on alternate days which was good. At the start of this year I started getting real bad sinus pains then the nose bleeds started so back to hospital and it was active again in the nose. Upped the steriods and azathioprine and again this seems to have it in check, saw doctor this week and he wants to start tapering the prednisolone again, hurrah. So in a nutshell this is my WG ride, had all the aches, tiredness, insomnia that goes along with it and the treatment, the highs the lows the why me.
Regards
Brian.
After reading some of your experiences I feel a bit of a fraud. I was diagnosed 6 years ago now with WG, this took some time. For me I started off not being able to breath through my nose, had blood tests etc nothing to report. Around the same time I started with an annoying cough, the nose got worse and I went to see ENT. He reamed me out which improved things and seemed to get rid of the cough until a year or so later it came back with a vengeance. Did the rounds with the GP, who is excellent and I cannot fault him at all, chest xray showed something in there as did CT scan. Usual asthma meds didnt help so ended up having lung biopsy, at this point I couldnt work because of the cough, lung promptly collapsed 3 days after biopsy and results were WG.
Loads of steriods and azathioprine seemed to have it in check, in fact for the last year I have been on 7.5mg pred on alternate days which was good. At the start of this year I started getting real bad sinus pains then the nose bleeds started so back to hospital and it was active again in the nose. Upped the steriods and azathioprine and again this seems to have it in check, saw doctor this week and he wants to start tapering the prednisolone again, hurrah. So in a nutshell this is my WG ride, had all the aches, tiredness, insomnia that goes along with it and the treatment, the highs the lows the why me.
Regards
Brian.