PDA

View Full Version : Off Preds Starting Taper of Immuran



Dumpy
03-26-2010, 01:10 PM
Got off of the Preds the first of Jan. and everything is going good so far. My Pulmonoligist has been watching me very close and doing blood work every month and has started to taper me off of the Immuran. I was on 150mg pre day and now I am down to 100mg. My Sed rate was 12 on my last blood work.
I would have posed a lot sooner but 2 days after stepping down on the Immuran I started to run a low grade of fever so I called my pulmy and went in for a check and my lungs where clear and my sinuses were also and he did blood work to check my blood cell count which was good too. He gave me a script of levaquin 750mg and told me if it kept up to take the levaquin. Well I waited a couple of days before I started on the antibiotic. It took over a week and a lot of rest before I got over the chills and fever. I couldn't stand the smell are the taste of food. Great way to lose weight because I lost 6 lbs. in a week. I'm not sure what I had either some sort of flu are I had gotten a pneumonia shot about 5 days before I got the chills are possibly all of the pollen that is falling in South Louisiana. All is a lot better now though and seems to be going good.
Hopefully if it all holds up and my doc will be able to lower the Immuran another 50mg the first of May.

pberggren1
03-26-2010, 01:47 PM
That's awsome. I hope you can get off of the Imuran totally and be symptom free.

Jack
03-26-2010, 06:10 PM
It is nice to hear a good news story! :)
Hope you can achieve total drug free.

elephant
03-26-2010, 09:43 PM
Good for you Dumpy! That is fabulous!

Sangye
03-26-2010, 11:28 PM
Yay! Way to go, Dumpy! I'm glad you're doing so well. :)

JanW
03-26-2010, 11:58 PM
Good for you, Dumpy!

Lola
03-27-2010, 01:20 PM
Good for you to hold off on the Levaquin, too - in my opinion, Dumpy

Lightwarrior
03-28-2010, 01:02 PM
Good for you to hold off on the Levaquin, too - in my opinion, Dumpy

Congratulations Dumpy, agree with Levaquin, good broad spectrum but can cause muscle weakness and should never be first line of defense. It is popular because you can do 750mg once a day for five days with same efficacy of 3 times a day for ten days with the pencillins and cephalosphorins which increase compliance as people don't miss doses and let the bad bugs take over before they die.

Doug
03-28-2010, 02:07 PM
I come back from oblivion to congratulate you, too, Dumpy! Way to go.

Dumpy
04-01-2010, 12:29 PM
Thank You All Very Much. It really is good getting off some of the meds but I will always be looking over my shoulders.
You know it was really was nice to get off of the Preds but in some ways it seems they will always punish you for having known them. My Doc told me that I would have some ackes (sp) and pains that I hadn't felt before and he was surely right but I will take being off of Preds any day.

Sangye
04-01-2010, 12:52 PM
Tell us when you get to zero pred-- we're gonna have a party for you! :D

elephant
04-01-2010, 08:50 PM
Yes, will have a huge party for you! I see my Rheumatologist today and I will ask her if I will be able to taper the prednisone again. Hoping I can.

Sangye
04-02-2010, 01:09 AM
Oh Elephant, I really hope she says yes!!

I started tapering this morning. I dropped from 4mg to 3.75mg. I'm gonna trick the pred--it'll never know I'm gone til I'm all the way down the road. :D

elephant
04-02-2010, 09:36 AM
Yes, she wants to taper me down to 9 mg of prednisone for 6 weeks, then 8 mg for six weeks and if I start to show symtoms( WG flare) she wants to increase the Cellcept to 2500 mg. So will wait and see. Trial and Error!

Dumpy
04-03-2010, 01:03 PM
Sangye,
You can go ahead and start the party because I got off of the Preds in Jan. and seem to be doing good so far. The one thing that I have noticed is the joint aches that I didn't have while I was on the Preds and hopefully some of that will ease up as time goes by. Hopefully when I make my visit to my Rheumy the first of May he will cut the Immuran back from 100 mg a day to 50mg.

Sangye
04-03-2010, 01:10 PM
D'oh! You totally said that and it just zipped right by me. Okay then, I'm off to buy a cake mix.... :D

jola57
04-03-2010, 01:23 PM
And I will get the candles. Congratulations that is very good news

Dumpy
04-03-2010, 01:30 PM
Sounds good to me !!! I'll bring the ice cream.

Lola
04-03-2010, 04:18 PM
I am really excited about the frosting!

elephant
04-03-2010, 10:32 PM
I will bring the plates! Can I have a extra piece of cake when its done? :)

Lightwarrior
04-04-2010, 02:06 PM
Ill do the turn around three times counterclockwise to destroy all the calories so we can all have two pieces dance.
302

Sangye
04-04-2010, 10:34 PM
ROTFL-- hilarious!!! :D

elephant
04-04-2010, 11:40 PM
That looked like a beautiful cake too! Too hilarious!