lafounk2
03-01-2010, 04:14 AM
Hi all,
It's been a while since I have written a note but read your entries often. My 15yo, Josh, is currently on the kidney registry as "inactive" status. The plan is that hopefully he'll be ready for transplant sometime this summer. My dilemma is that we may not have a living kidney donor available for him. For those that have already received kidney transplants have any of you had deceased donors? Has your transplant been successful so far? How long as your donor kidney been functioning? Josh's current status is he's on dialysis since Nov 09. He has a "growth" on his spleen for which we are hoping is a cyst (MRI scheduled for 3/19). Josh seems to be in remission. His Myfortic was stopped a few weeks ago because Josh's hemaglobin was lowering down to 6.9. His pred was increased to 30 mg to cover the remission. Apparently, once Josh's MRI is done, he'll start back on Myfortic. Otherwise, Josh is doing as well as to be expected.
Thanks for your feedback.
Josh's mom, Kelly
It's been a while since I have written a note but read your entries often. My 15yo, Josh, is currently on the kidney registry as "inactive" status. The plan is that hopefully he'll be ready for transplant sometime this summer. My dilemma is that we may not have a living kidney donor available for him. For those that have already received kidney transplants have any of you had deceased donors? Has your transplant been successful so far? How long as your donor kidney been functioning? Josh's current status is he's on dialysis since Nov 09. He has a "growth" on his spleen for which we are hoping is a cyst (MRI scheduled for 3/19). Josh seems to be in remission. His Myfortic was stopped a few weeks ago because Josh's hemaglobin was lowering down to 6.9. His pred was increased to 30 mg to cover the remission. Apparently, once Josh's MRI is done, he'll start back on Myfortic. Otherwise, Josh is doing as well as to be expected.
Thanks for your feedback.
Josh's mom, Kelly