Ian Pike
03-17-2023, 09:31 PM
Hi All,
thankyou for allowing me to join this wonderful community. it is so good to know that there are more of us out there.
I was diagnosed in 2017 after months of sinus involvement and joint pain. it took 5 specialists to get this disease nailed down in the end.
At its worst i had disease showing in the following areas. Joints, eyes, sinus, ears, lungs and of course the kidneys. i had rituximab and steroids at first, then they were maintaining me on Azathioprine.
I have been on long term Azathioprine, and have been in remission for 5 years. recently my lab results showed that my Bone marrow was struggling because of the Azathioprine.
so they decreased the Aza, but Wegener's has made a come back because of it. i have just had a Rituximab and are due to have the second dose next week.
Lets just hope that this kicks it back into remission!
thankyou for allowing me to join this wonderful community. it is so good to know that there are more of us out there.
I was diagnosed in 2017 after months of sinus involvement and joint pain. it took 5 specialists to get this disease nailed down in the end.
At its worst i had disease showing in the following areas. Joints, eyes, sinus, ears, lungs and of course the kidneys. i had rituximab and steroids at first, then they were maintaining me on Azathioprine.
I have been on long term Azathioprine, and have been in remission for 5 years. recently my lab results showed that my Bone marrow was struggling because of the Azathioprine.
so they decreased the Aza, but Wegener's has made a come back because of it. i have just had a Rituximab and are due to have the second dose next week.
Lets just hope that this kicks it back into remission!