Anyone here receive Evusheld for covid prevention?

[Neganbtw]

My rheumatologist has put me on the list to receive this since my vaccines did not take (zero antibody).

Has anyone else received this?

[Pete]

Not yet. I'm going to ask my rheumy about it as I had an antibody test last month that did not detect any covid antibodies after two rtx infusions in March and September.

[shankxonline]

Not yet here as well. Getting antibody test done this week to see if I qualify. If anybody can share their experience or research around this - that will be great.


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[Masha]

No antibodies here after 2 vaccines and 1 booster. My rheumatologist has me on the list. Since Evusheld is made with monoclonal and that is in short supply it may be a while. I am guessing big teaching hospitals will have it first.

[nancytuesday]

If you are interested here is a petition for the US government to purchase more Evusheld: https://www.change.org/p/request-the-government-make-evusheld-available-to-all-in-need?utm_content=cl_sharecopy_31900501_en-US%3A7&recruiter=483927738&recruited_by_id=fd761ea0-cd2c-11e5-aad1-f5d4dbeec3ff&utm_source=share_petition&utm_medium=copylink&utm_campaign=psf_combo_share_initial&utm_term=psf_combo_share_initial&share_bandit_exp=initial-31900501-en-US

I found a pharmacist in NC that has a few doses. Just waiting on a script then hopefully we get the shots. Will post if I get them.

[Masha]

Where in NC. Is it Charlotte?

[Pete]

I just had a note from Dr VillaForte. I’m a candidate for evusheld. The trick is getting it. There aren’t many doses available.

[nancytuesday]

Where in NC. Is it Charlotte?



Yes. Charlotte.

[Masha]

Where do I go. My doctor is with Tryon. Hope they have some left.

[nancytuesday]

Where do I go. My doctor is with Tryon. Hope they have some left.

Here is the NC page that shows all the providers. You will need a prescription from your doctor - so I would get that first if you can. I talked to the Oakhurst pharmacist. He has some but has not administered them yet - due to paperwork requirements. Hope this helps.

https://covid19.ncdhhs.gov/information/individuals-families-and-communities/individuals-higher-risk/find-evusheld-nc

[NatriceRomeo]

I recently received monoclonal antibodies due to a false positive Covid rapid test. My rheumatologist said that the monoclonal antibody lasts 3 months. After 3 months she wants me to receive evushield.


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[Masha]

Nancy, Thank you. I just got my Evusheld shots today at Oakhurst.

[drz]

Do any of these have a risk of causing a flare of GPA?

[Masha]

My rheumatologist had to write a prescription for me to get the shots. I am confident that if she felt there was a risk for me she would not have written it. I am very relieved to have it. There is a very low supply, and at least now I have 80% protection. Like everyone else without B cells, I had no antibodies.

[nancytuesday]

Nancy, Thank you. I just got my Evusheld shots today at Oakhurst.


Fantastic and congratulations - Greg is great! I received mine yesterday as well. No side effects at all for me. I am going to try to get my antibodies checked in blood in a few weeks - I am perhaps overly cautious, but that's me.

[MaxD]

I'm scheduled to get evusheld in a week. For updated information on availabile doses check out:
https://healthdata.gov/Health/COVID-19-Public-Therapeutic-Locator/rxn6-qnx8/data

You can filter by state/zip code etc.

[John S]

My doctors cannot get enough Evusheld for their patients that need it. The healthdata.gov website shows many places that have not administered their available doses. How do we get them to give us the doses they are not using?

[Pete]

Ohio State just notified me that I am eligible to receive Evusheld. I’m waiting to hear from the pharmacy about the when and where. Hope it’s soon…

[John S]

A friend that has non-Hodgkin Lymphoma and is on Rituximab told me that he has been selected to receive Evusheld. Color me jealous.

[John S]

I'm now scheduled to receive Evusheld on Friday. :)

[John S]

How long does it take for Evusheld to be affective? How long will the protection last?

[Pete]

I got Evusheld yesterday. The doc said I should develop some immunity almost immediately. Also said I’ll need another dose in about six months. As for the shots themselves, it was a nonevent— no injection site pain and no other reaction after 24 hours.

My next rtx is next month, and I’m going to ask Dr VillaForte about testing to see if Evusheld is working.

[John S]

I got the two injections yesterday morning. The nurse kept me in the observation area for an hour. I have not had any reaction at all, unlike the vaccine. I’m very hopeful but aware that the US is still experiencing over 2000 Covid deaths daily and the newest variant is still a question mark.

[Masha]

FDA revised Evusheld dosage on 2-24-22. We are now told to get 300, before this date we received 150. Now their revision says to go get another 150. Then you are to count six months from your second dose of 150 and get another 300.
Just when I thought I was safe!

[John S]

My doctors office called and set an appointment for Monday. I’ll get the extra dosage at that time.

[Blake]

Two weeks since booster. Will get tested in two more weeks to see if there was any response. If not, doctor is ready to prescribe Evusheld and says he has ample supply. Of course, that was before the FDA upped the recommended dosage by 2x - thereby cutting the existing supply in half. The waiting makes me pretty anxious, but there is a lot of that these days.

[Bloom]

I had Sotrivimab, which is a monoclonal antibody.when I got Covid. I got quite unwell before I had it, quite quickly. My temp went over 40C and I became very dizzy and unsteady, at one point I ended up on the floor and I'm not sure how I got there! I had bitten my tongue on one side and my face also hurt on that side. I was admitted to hospital for a few hours and had IV antibiotics. I had Sotrovimab the next day. The NHS matches a positive test with their database of the priority group and a Dr from the Covid Treatment Centre contacts you within 24 hours and arranges the treatment.
I had previously had 4 doses of Covid vaccine, I had a flare in October 2022 and started mycophenolate. I have Rituximab and am on steroids. the 4th dose of the vaccine seemed to make my GPA symptoms worse. I think the Sotrovimab probably worked quite well though.
One month later though I am still testing positive on lateral flow tests and I can't say I feel great. My Consultant said it was likely to be Omicron Ba2, which takes you longer to recover from and would be at least a month.
Take care guys!

[Ashley37]

My Rheumy is at MUSC Mt Pleasant. I saw her last Thursday and she strongly recommended I get it. They called me the next day and said I’m scheduled to receive it on the 20th!


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[shankxonline]

I received Evusheld 300 last week. As most folks wrote - non-event and no side effects (so far). Hoping that my body develops the required protection against the Covid variants :fingers crossed:


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