Telling my story

[gunnyl]

I was asked by my Rheumatologist to present my own GPA case and the events leading up to diagnosis to a group of medical students in a couple of months at their annual symposium.

I was initially misdiagnosed by an infectious disease doctor in Dallas and it almost cost me my life.

I was given access to the Hospitals research sites while I was admitted and I was able to identify the 'trigger' and the missed symptoms that followed leading up to the actual diagnosis.

I have been very blessed with amazing doctors since the day I was diagnosed and have managed to keep the wolf at bay by having a partnership approach to my care. I was exceptionally blessed to get a new Rheumy today who is very versed in our disease and committed to continuing the partnership.

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[Pete]

gunnyl

Good to hear from you and that all is well!! Hope the good partnership continues and results in good health for you!!

[John S]

Welcome to GPA Highway. May your trip be long and fruitful.

[gunnyl]

John S been traveling the GPA highway for 9 years. Was diagnosed 9 years ago this week.

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[mishb]

Hi Gunny, great to hear from you again.

I'm so glad you have found a knowledgeable specialist.

Good luck with the symposium

[gilders]

been traveling the GPA highway for 9 years. Was diagnosed 9 years ago this week.

Happy anniversary!
Good to hear that medical students are getting to hear it straight from the horse's mouth (hope you have that saying in the US) rather than what Drs "think" how it effects patients.