AnnaG
02-10-2010, 05:25 AM
I found your group in doing a search on several things my dr said may be at the root of my problem. From the sound of it I may be joining you. Feel free to comment, add suggestions, advice or opinions as you will. I'll appreciate any and all of it.
So, I'm a 47 year old white female. ( Sounds like the start of a personal ad huh? :P) I will tell you what is already known for sure at this point.
I have fibro, arthritis, chronic B12 deficiency, past anemias, high cholesterol, degenerative disk disease and irritable bowel disease of unknown origin. At my physical for the last year I've had hematuria for some time with no symptoms. Uro did cytoscopy which was fine, so ordered an abdominal CT. GP called and said I need to see a pulmo because the ab CT caught the bottom of my lungs and I have nodules. So I went to pulmo and he says they are small, 3mm or so, and am having a full lung CT tomorrow morning. He says there are several things these nodules can be, but from what I've been reading only one thing also involves blood in urine and the other synptoms I have. Wegs. At first I was pretty sure the nodules were probably from an old histoplasmosis infection I didn't know I'd had or something, because that is pretty common here in Iowa where I live. But that doesn't explain the other array of stuff that's going on with me. It's really going to make those other doctors look like fools to find out they been pooh poohing my 'fibro' and telling me to see a shrink if the pulmo has hit the nail on the head eh?
I take 1cc of cyanocobalmin IM every 2 wks and that has the B12 deficiency under control as of my labs 2 weeks ago. I'm on Zocor for the chol, which was 274 at last labs. And an array of other crap for the fibro and bowel probs. I've had multiple polyps removed in the last few years. Also just had to have a cortisone shot in my right elbow for a case of tendonitis that mysteriously appeared and wouldn't heal.
I did have one ANC come back positive 2 years ago but they said they didn't know why that was or it could be nothing. ok.....
I've constantly had sinus infections and ear infections for the past couple of years. My old GP, whom I've since fired, told me I had scarring in my nose from picking it. I don't pick, sorry dude. XP ( As an aside, I did tell him he is an asshole at one point and he stopped and listened to me, lol) So I went to an ENT who said on scope that I have thick sinus ridges and gave me the nasal wash lesson, which I do when things get unbearable. I have a chronic sore throat. BUT, I am a smoker, so I'm sure they have attributed much of my issues to that. But if I didn't smoke, by now I'd have ripped somebodies head off and... you know the rest.
Anyway, I'm also a single mom of 8yr old twin boys. Thier dad bailed when they were a year old. We live very happily in a small town in Iowa with a 17 pound cat and a 85 pound lab. And when my arthritis flares and I run to the DR every 3 month for a steroid boost I feel great for a few days. AHHHH. I know pred is/can be bad, but boy I live for those. I also use Advair a lot lately cuz I feel like I can't breath. Again attributed to the dreaded cigs. But I started breathing a lot better after a couple months of the B12, it was amazing really. I must have been pretty anemic.
And last but not least, my mother had MS. Don't know much on genetic history as she was adopted and my paternal side is unknown as well. My grandma raised me so I don't know much about sibling history either.
So there ya go. What do you think? Honestly. At this point if they don't figure something out I am ready to pack us up and go to University Iowa hospital, dog and all. ugh.
So, I'm a 47 year old white female. ( Sounds like the start of a personal ad huh? :P) I will tell you what is already known for sure at this point.
I have fibro, arthritis, chronic B12 deficiency, past anemias, high cholesterol, degenerative disk disease and irritable bowel disease of unknown origin. At my physical for the last year I've had hematuria for some time with no symptoms. Uro did cytoscopy which was fine, so ordered an abdominal CT. GP called and said I need to see a pulmo because the ab CT caught the bottom of my lungs and I have nodules. So I went to pulmo and he says they are small, 3mm or so, and am having a full lung CT tomorrow morning. He says there are several things these nodules can be, but from what I've been reading only one thing also involves blood in urine and the other synptoms I have. Wegs. At first I was pretty sure the nodules were probably from an old histoplasmosis infection I didn't know I'd had or something, because that is pretty common here in Iowa where I live. But that doesn't explain the other array of stuff that's going on with me. It's really going to make those other doctors look like fools to find out they been pooh poohing my 'fibro' and telling me to see a shrink if the pulmo has hit the nail on the head eh?
I take 1cc of cyanocobalmin IM every 2 wks and that has the B12 deficiency under control as of my labs 2 weeks ago. I'm on Zocor for the chol, which was 274 at last labs. And an array of other crap for the fibro and bowel probs. I've had multiple polyps removed in the last few years. Also just had to have a cortisone shot in my right elbow for a case of tendonitis that mysteriously appeared and wouldn't heal.
I did have one ANC come back positive 2 years ago but they said they didn't know why that was or it could be nothing. ok.....
I've constantly had sinus infections and ear infections for the past couple of years. My old GP, whom I've since fired, told me I had scarring in my nose from picking it. I don't pick, sorry dude. XP ( As an aside, I did tell him he is an asshole at one point and he stopped and listened to me, lol) So I went to an ENT who said on scope that I have thick sinus ridges and gave me the nasal wash lesson, which I do when things get unbearable. I have a chronic sore throat. BUT, I am a smoker, so I'm sure they have attributed much of my issues to that. But if I didn't smoke, by now I'd have ripped somebodies head off and... you know the rest.
Anyway, I'm also a single mom of 8yr old twin boys. Thier dad bailed when they were a year old. We live very happily in a small town in Iowa with a 17 pound cat and a 85 pound lab. And when my arthritis flares and I run to the DR every 3 month for a steroid boost I feel great for a few days. AHHHH. I know pred is/can be bad, but boy I live for those. I also use Advair a lot lately cuz I feel like I can't breath. Again attributed to the dreaded cigs. But I started breathing a lot better after a couple months of the B12, it was amazing really. I must have been pretty anemic.
And last but not least, my mother had MS. Don't know much on genetic history as she was adopted and my paternal side is unknown as well. My grandma raised me so I don't know much about sibling history either.
So there ya go. What do you think? Honestly. At this point if they don't figure something out I am ready to pack us up and go to University Iowa hospital, dog and all. ugh.